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Helpful Resources

Developed by the International Society for Quality of Life Research and the National Cancer Institute, this 5½-minute video describes the application of PROMIS measures in a clinical setting for patients suffering from gastro-intestinal distress. 

Applications in Clinical Practice

HealthMeasures are increasingly being used in clinical settings. They provide clinicians with efficient, reliable, and valid assessments of adult and child health, including function, symptoms, feelings and perceptions.

Integrating Patient-Reported Outcomes into Electronic Health Records (EHR)

The National Center for Advancing Translational Sciences (NCATS) of the National Institutes of Health (NIH) has awarded $6.3 million to a coalition of nine universities, led by Northwestern University.

 

  • Project will make it easier for researchers and clinicians to collect information about patient-reported outcomes and use it to improve clinical care and research
  • Outcomes surveys ask patients about their physical, mental and social health
  • “This represents the future of patient care and research”

 

Read the full press release here

Evidence Supporting Routine Collection of Patient-Reported Outcomes (PROs)

There is a growing body of evidence on the impact of routinely collecting PROs (like those in PROMIS®, Neuro-QoL, and ASCQ-MeSM) in clinical practice.

  • A systematic review of this literature found three benefits of the clinical use of PROs: improved patient-provider communication, patient satisfaction, and detection of unrecognized problems. The evidence has not accumulated for the impact of PROs on changes in patient management, patient behavior, health outcomes, nor improvement in quality of healthcare.
  • A 2015 review confirmed the finding that routine collection of PROs improved communication about symptoms and quality of life.

HealthMeasures Are Included in Clinical Guidelines

  • The North South Wales Agency for Clinical Innovation published a report on using patient reported outcomes in the integrated care context. Based on a 2013 review, PROMIS measures were included in a recommended short-list of PRO measures. The report states, “After review of the evidence there was strong evidence to support PROMIS.”
  • PROMIS measures are included in The American College of Rheumatology’s 2015 Guidelines for the Treatment of Rheumatoid Arthritis.

Identify Your Clinical Practice Needs

Use of HealthMeasures in clinical practice requires knowing your assessment goals, appropriate measures for those goals, which patients will complete measures, when patients will provide that information, and what you will do with the results. The International Society of Quality of Life Research (ISOQOL) published a User’s Guide for implementing PROs in clinical practice. Though not specific to HealthMeasures, the insights and suggestions apply to HealthMeasures.