Developed by the International Society for Quality of Life Research and the National Cancer Institute.
Selecting a Data Collection Tool
Use of HealthMeasures in clinical practice usually requires access to a measure’s final score at the time of the clinical encounter. This may or may not include integration of HealthMeasures in the electronic health record (EHR).
If EHR Integration is Required
- Some EHRs (e.g., versions of Epic since 2012) include selected HealthMeasures. These measures are scored and viewable within a given patient’s record. Talk with your local EHR team about what is available to you.
- Some institutions have invested in integration within their local EHR (e.g., University of Rochester Medical Center, University of Utah Health Care). Talk with your local EHR team about what is available to you.
Integration of patient-completed measures in an EHR is challenging as it a) requires the coordination of clinicians, administrators, information technology specialists, and EHR staff and b) needs to be prioritized above other competing demands. Consequently, many clinicians find it more feasible to use a data collection tool alongside the EHR, not integrated within it.
Data Collection Tools for Use Alongside an EHR
- NIH Toolbox® iPad App for all NIH Toolbox and selected PROMIS® measures.
- AO Patient Outcomes Center is a licensed, web-based tool tailored for self-report measures used in orthopedic care. It includes PROMIS CATs and selected short forms that are scored and graphed.
- Assessment Center Application Programming Interface (API) is a tool to embed HealthMeasures, including CATs, in your own data collection systems. API users include REDCap, OBERD, and academic institutions. API users have access to all self- and proxy-report HealthMeasures.
- MyGiHealth is free iOS smartphone app that allows patients to report gastrointestinal (GI) symptoms using the PROMIS GI measures. Patients can forward their scores to physicians who use PROMIS to guide clinical decision-making.
Contact Us to learn more about using the Assessment Center Application Programming Interface (API). It makes available all self- and proxy-report HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me, NIH Toolbox Emotion) within your data collection system. This requires local IT staff effort and support.