Selecting a HealthMeasure

Selecting a measure involves many considerations. If you are uncertain about which measure to choose, consider these recommended measures available through Search & View Measures:

  • NIH Toolbox® batteries for Cognition, Emotion, Motor, and Sensation
  • PROMIS® Global (10 items measuring physical health and mental health)
  • PROMIS-29 profile (measures Physical Function, Fatigue, Pain Interference, Pain Intensity, Sleep Disturbance, Depression, Anxiety, and Ability to Participate in Social Roles and Activities)
  • Neuro-QoL short forms for neurological conditions
  • ASCQ-MeSM short forms for sickle cell disease

The International Society for Quality of Life Research and the National Cancer Institute hosted a webinar on selecting the appropriate outcome measure. Factors to consider include:

  • Conceptual and measurement model
  • Reliability
  • Validity
  • Responsiveness
  • Interpretability
  • Low respondent and administrative burden
  • Alternate forms
  • Cultural and language adaptations

Additional Resources

PROMIS includes multiple short forms for a given domain. Here are general recommendations for the short form that is appropriate for most purposes. In some cases, a longer short form may provide a more precise score. In those cases, the longer short form (or expanded recommendation) should be used in place of the general recommendation.

Adult Measures


Domain
Primary Recommendations Secondary Recommendations
Overall Health v1.2 Global Health v1.2 Global Health and v2.0 PROMIS-29 Profile
Anxiety v1.0 Anxiety 4a short form v1.0 Anxiety 8a short form
Cognitive Function v2.0 Cognitive Function 8a short form  
Depression v1.0 Depression 4a short form v1.0 Depression 8a short form
Psychosocial Illness Impact v1.0 Negative 4a short form
v1.0 Positive 4a short form
v1.0 Negative 8a short form
v1.0 Positive 8a short form
Alcohol v1.0 Alcohol Use 7a short form

v1.0 Alcohol Use 7a short form and any of the following:

v1.0 Negative Consequences 7a short form
v1.0 Positive Consequences 7a short form
v1.0 Negative Expectancies 7a short form
v1.0 Positive Expectancies 7a short form

Anger v1.1 Anger 5a short form  
Pain Intensity v1.0 Pain Intensity 3a short form  
Pain Behavior v1.0 Pain Behavior 7a short form  
Pain Interference v1.0 Pain Interference 6a short form  
Fatigue v1.0 Fatigue 7a short form v1.0 Fatigue 13a short form1
Physical Function v1.0 Physical Function 10a short form

v1.0 Physical Function 10a short form and

v2.0 Physical Function Upper Extremity short form2

Sleep v1.0 Sleep Disturbance 8a short form  
Ability to Participate in Social Roles and Activities v2.0 Ability to Participate in Social Roles and Activities 4a short form v2.0 Ability to Part Social Roles and Activities 8a short form
Satisfaction with Participation in Social Roles and Activities v2.0 Satisfaction with Social Roles and Activities 4a short form v2.0 Satisfaction Social Roles and Activities 8a short form
Companionship v2.0 Companionship 4a short form v2.0 Companionship 6a short form
Emotional Support

v2.0 Emotional Support 4a short form

 

v2.0 Emotional Support 8a short form
Informational Support

v2.0 Informational Support 4a short form

 

v2.0 Informational Support 8a short form
Instrumental Support v2.0 Instrumental Support 4a short form v2.0 Instrumental Support 8a short form
Social Isolation v2.0 Social Isolation 4a short form v2.0 Social Isolation 8a short form
1This contains the same items as those in the FACIT Fatigue 13 and will be available in Fall 2016.
2Based on the v1.2 Upper Extremity item bank that includes 16 items. Short form will be available in Fall 2016.

Pediatric (Ped) Measures


Domain
Primary Recommendations Secondary Recommendations
Overall Health v1.0 Ped: Global 7+2 v1.0 Ped: Global 7+2 and v2.0 Ped: Profile 25
Anger v2.0 Ped: Anger 5a short form  
Anxiety v2.0 Ped: Anxiety 8a short form  
Depressive Symptoms v2.0 Ped: Depression 8a short form  
Asthma Impact v2.0 Ped: Asthma Impact 8a short form  
Fatigue v2.0 Ped: Fatigue 10a short form  
Mobility v2.0 Ped: Mobility 8a short form  
Pain Interference v2.0 Ped: Pain Interference 8a short form  
Upper Extremity v2.0 Ped: Upper Extremity 8a short form  
Peer Relations v2.0 Ped: Peer Relationships 8a short form  

Parent Proxy (PP) Measures


Domain
Primary Recommendations Secondary Recommendations
Overall Health v1.0 PP: Global 7+2 v1.1 PP: Global 7+2 and v2.0 PP: Profile 25
Anger v2.0 PP: Anger 5a short form  
Anxiety v2.1 PP: Anxiety 8a short form  
Depressive Symptoms v2.1 PP: Depressive Symptoms 6b short form  
Asthma Impact v2.0 PP: Asthma Impact 8a short form  
Fatigue v2.0 PP: Fatigue 10a short form  
Mobility v2.0 PP: Mobility 8a short form  
Pain Interference v2.0 PP: Pain Interference 8a short form  
Upper Extremity v2.0 PP: Upper Extremity 8a short form  
Peer Relations v2.0 PP: Peer Relationships 7a short form  

Updated 4/18/2016