List of Measures

Available ASCQ-MeSM Measures for Adult Self-Report

 Adult Domains  Definition Bank/Scale/Pool
# items
Short Form
# items
Emotional Impact The ASCQ-Me Emotional Impact item bank assesses the effect of sickle cell disease (SCD) on a person's feelings and emotions (including worry, depression, and loneliness). It does not ask questions to characterize the severity and frequency of a person's emotional state outside of the context of how their health affects how they feel. Higher scores for Emotional Impact would mean less emotional distress and less impact of emotional distress on the person. 20 5
Pain Episodes* The ASCQ-Me Pain Episode Frequency and Severity measure asks about number, frequency, and duration, as well as severity and interference of pain episodes or crises. This measure does not ask about the unpredictability of the pain episodes or the myriad of ways that adults with SCD told us that pain episodes affect their lives. Higher scores indicate greater frequency and greater severity of pain episodes, respectively. 5  
Pain Impact The ASCQ-Me Pain Impact item bank assesses the severity of pain and the extent to which the severe and unpredictable pain that characterizes SCD affects a person's ability to do things. It does not include questions that ask about behaviors associated with pain or the quality of pain, other than severity. Higher scores for Pain Impact would mean better pain control, less pain, and less impact of pain on the functioning and wellbeing of the person.  13 5
Sickle-Cell Disease Medical History Check-list* The Sickle Cell Disease Medical History Checklist (SCD-MHC) is not intended to be a measure that would assess change in the health and wellbeing of adults with SCD over time. Rather, it is one method to describe the severity of a person's SCD. The SCD-MHC is a list of conditions secondary to SCD as well as treatments for people with SCD which are associated with severity of SCD. The questions ask patients to report symptoms, organ damage, bone damage, and treatments which are characteristic of SCD. The scores for this checklist are not expected to change greatly in the near term. This is a SCD-specific measure and does not apply to the general population or to populations with other chronic conditions. 9  
Sleep Impact The ASCQ-Me Sleep Impact item bank assesses the effect of SCD on getting to sleep, staying asleep, falling back to sleep after waking, and getting enough sleep. It does not include questions about the quality of sleep. Higher scores for Sleep Impact would mean better sleep and less impact of SCD on sleep. 12 5
Social Functioning Impact The ASCQ-Me Social Functioning Impact item bank assesses the effect of SCD on general activities and activities with family and friends. These questions do not ask about social role functioning in the abstract. That is, they do not ask about the ability to fulfill the social roles of friend, member of the community, worker, parent, spouse, etc. Higher scores would mean less interference of SCD on social functioning. 17 5
Stiffness Impact The ASCQ-Me Stiffness Impact item bank assesses the severity of stiffness that a person feels in general and in his or her joints and the degree to which stiffness limits the person's movements. Higher scores for Stiffness Impact would mean less stiffness and less interference of stiffness on mobility. 15 5

  *uncalibrated item pool

Types of Measures

ASCQ-Me measures include item banks that can be administered as computer adaptive tests and short forms. Measures assess the physical, social, and emotional impact of sickle cell disease through self-report.


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