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Helpful Resources

Watch a 5-minute video in which Cleveland Clinic neurologist Deborah Miller, MD describes tools for quality-of-life measurement in multiple sclerosis.

Intro to Neuro-QoLTM

Neuro-QoL measures quantify the physical, mental, and social effects experienced by adults and children living with neurological conditions.

Adult Assessment

Neuro QoL Adult Domain Framework 06 11 2019

Pediatric Assessment

 

Neuro QoL Ped Domain Framework 06 11 2019

Short Forms and Computer Adaptive Tests

Neuro-QoL offers two types of instruments.

  • Short Forms: fixed set of 5-10 items or questions for one domain
  • Computer Adaptive Tests (CATs): items are dynamically selected for administration from an item bank based upon the respondent’s previous answers. Usually 4-12 items with a high level of measurement precision. Learn more about CATs>> or try out a CAT>>

Neuro-QoL is Appropriate for Use Across a Range of Neurological Conditions

Neuro-QoL measures can be used in a range of adult and pediatric neurological conditions including but not limited to: stroke, multiple sclerosis, Parkinson’s disease, epilepsy, amyotrophic lateral sclerosis (ALS), traumatic brain injury (TBI), military deployment–related traumatic brain injury (MDR-TBI), spinal cord injury (SCI), and Huntington’s disease (HD).

Neuro-QoL measures can be administered alongside PROMIS® or NIH Toolbox® measures that assess other aspects of health and function.

Active Neuro-QoL Research

To learn more about Neuro-QoL, watch this 4-minute introductory video.

Neuro-QoL: A New Patient-Reported Outcome Measure for Neurology Research and Practice

 

HealthMeasures is the official information and distribution center for Neuro-QoL which was developed and evaluated with National Institutes of Health (NIH) funding.