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Helpful Resources

Watch a 5-minute video in which Cleveland Clinic neurologist Deborah Miller, MD describes tools for quality-of-life measurement in multiple sclerosis.

Intro to Neuro-QoL

Adult Assessment

Neuro-QoL developed a set of health-related quality of life measures for use with adults who have a neurological condition or disorder. The self-report measures can be completed by a proxy responder when necessary.

neuro qol adult domain framework

Pediatric Assessment

Neuro-QoL developed a set of health-related quality of life measures for use with 8-17 year olds who have a neurological condition or disorder. The self-report measures can be completed by a parent or caregiver when necessary.

neuro qol pediatric framework

Short Forms and Computer Adaptive Tests

Neuro-QoL offers two types of instruments.

  • Short Forms: fixed set of 5-10 items or questions for one domain
  • Computer Adaptive Tests (CATs): items are dynamically selected for administration from an item bank based upon the respondent’s previous answers. Usually 4-12 items with a high level of measurement precision. Try out a CAT!

Neuro-QoL is Appropriate for Use Across a Range of Neurological Conditions

Neuro-QoL measures can be used in a range of adult and pediatric neurological conditions including but not limited to: stroke, multiple sclerosis, Parkinson’s disease, epilepsy, amyotrophic lateral sclerosis (ALS), traumatic brain injury (TBI), military deployment–related traumatic brain injury (MDR-TBI), spinal cord injury (SCI), and Huntington’s disease (HD).

Neuro-QoL measures can be administered alongside PROMIS® or NIH Toolbox® measures that assess other aspects of health and function.

To learn more about Neuro-QoL, watch this 4-minute introductory video.

Neuro-QoL: A New Patient-Reported Outcome Measure for Neurology Research and Practice