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Helpful Resources

In what diseases can Neuro-QoL be used?

Neuro-QoL measures were developed to be appropriate for a range of neurological conditions. They are not disease-specific measures. They were initially validated in five adult (stroke, multiple sclerosis, Parkinson’s disease, epilepsy, and amyotrophic lateral sclerosis [ALS]) and two pediatric conditions (epilepsy and muscular dystrophy). They were subsequently expanded for use in traumatic brain injury (TBI) and spinal cord injury (SCI).

Read more about the use of Neuro-QoL measures and items in Neuro-QoL Publications.

Available Translations

Neuro-QoL measures are available in languages other than English.

Adult Measures

Neuro-QoL Domain Item Bank and Short Forms Available in the Following Languages: Only Short Forms
Anxiety Spanish  
Depression Spanish  
Fatigue Arabic, Czech, Danish, Dutch, Finnish, French, German, Greek, Hebrew, Hungarian, Italian, Japanese, Korean, Norwegian, Polish, Portuguese, Russian, Swedish, Traditional Chinese, Turkish  
Upper Extremity (Fine Motor, ADL) Spanish  
Lower Extremity (Mobility) Spanish  
Cognitive Function v2.0 Spanish  
Emotional and Behavioral Dyscontrol Spanish  
Positive Affect and Well-Being Spanish  
Sleep Disturbance scale Spanish, Traditional Chinese  
Ability to Participate in Social Roles and Activities         Spanish  
Satisfaction with Social Roles and Activities Spanish  
Stigma Spanish, Simplified Chinese Korean (8-item)
Communication scale Spanish  

 

Pediatric Measures

Neuro-QoL Domain Item Bank and Short Forms Available in the Following Languages: Only Short Forms
Anger Spanish  
Anxiety Spanish German, French, Italian
Depression Spanish  
Fatigue Spanish  
Social Relations -Interaction with Peers Spanish  
Social Relations -Interaction with Adults (item pool) Spanish  
Pain Spanish  
Cognitive Function v2.0 Spanish  
Lower Extremity Function (Mobility) Spanish  
Upper Extremity Function (Fine Motor, ADL) Spanish  
Stigma Spanish German, French, Italian

 Last updated on April 4, 2016

Translations in Progress

Several groups are currently translating selected Neuro-QoL measures into a variety of languages including Hausa, Turkish, and Swedish. Contact us for more information about translating measures.