List of Pediatric Measures

Available Neuro-QoL Measures for Pediatric Self-Report (ages 8-17)

Pediatric Domains Definitions

Bank/Pool/ Scale

# items

Short Form

# items 

Anger Angry mood (e.g., irritability, frustration), verbal aggression, and efforts to control anger. 8  
Anxiety Unpleasant thoughts and/or feelings related to fear (e.g., fearfulness, feelings of panic), helplessness, worry, and hyperarousal (e.g., tension, nervousness, restlessness). 19 8
Cognitive Function Perceived difficulties in everyday cognitive abilities such as memory, attention, concentration, processing speed, and organization skill. 14 8
Depression Experience of loss and feelings of hopelessness, negative mood (e.g., sadness, guilt), decrease in positive affect (e.g., loss of interest), information-processing deficits (e.g., problems in decision-making), negative views of the self (e.g., self-criticism, worthlessness), and negative social cognition (e.g., loneliness) 16 8
Fatigue Sensations ranging from tiredness to an overwhelming, debilitating, and sustained sense of exhaustion that decreases one’s capacity for physical, functional, social, and mental activities. 11 8
Lower Extremity - Mobility* One's ability to carry out various activities involving the trunk region and increasing degrees of bodily movement, ambulation, balance, or endurance. 20  
Pain

An unpleasant sensory or emotional experience associated with actual or potential tissue damage, or described in terms of such damage.

Conceptually divided into components of quality (e.g. the nature, characteristics, intensity, frequency, and duration of pain), behaviors (e.g. verbal and nonverbal actions that communicate pain to others), and interference (e.g. impact of pain on physical, mental, and social activities).

10  
Social Relations – Interaction with Adults*

Degree of involvement with adults in one’s usual social roles, activities, and responsibilities.

 

 9  
Social Relations – Interaction with Peers Degree of involvement with one's peers in usual social roles, activities, and responsibilities. 16 8
Stigma Perceptions of self and publically enacted negativity, prejudice, and discrimination as a result of disease-related manifestations. 18 8
Upper Extremity - Fine Motor, ADL* One's ability to carry out various activities involving digital, manual, and reach-related functions, ranging from fine motor to self-care (activities of daily living). 20  

*uncalibrated item pool

Types of Measures

Pediatric Neuro-QoL includes measures for children ages 8-17. As with Adult Neuro-QoL, Pediatric Neuro-QoL measures the functions, symptoms, behaviors, and feelings identified as important by people with neurological conditions and their caregivers. Pediatric Neuro-QoL measures include item banks that can be administered as computer adaptive tests (CATs) or as fixed length short forms. There are also uncalibrated item pools which use a raw summary score. All measures are self-reported.

Translations

There are many available translations of Neuro-QoL measures.

Retired Measures

Don’t see a measure that you have used in the past? To request access to a retired measure, contact us.