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HealthMeasures User Conference


The 2017 HealthMeasures User Conference brought together more than 160 clinicians, researchers, and other leaders in the field of patient-reported outcomes and performance-based measures. Conference attendees came away with new insights, resources, and best practices for applying HealthMeasures in clinical care, clinical research, and quality measurement.

The high energy and collegial spirit on display at the conference were inspiring, and our goal is to keep the exchange of ideas and experiences flowing within the HealthMeasures User Community. We invite you to review the 2017 User Conference presentations below, check out the HealthMeasures Forum, and to sign-up for the HealthMeasures Updates Newsletter

HealthMeasures User Conference Slides

Track A: Advancing Clinical Care

Track B: Enhancing Quality Measurement

PROMIS and the American Joint Replacement Registry: National implementation of PROMIS in a clinical data
Caryn Etkin, PhD, MPH, American Joint Replacement Registry

Making a Swedish PROMIS: A Needs Assessment
J.E. Chaplin, PhD, AFBPsS, Sahlgrenska Academy at University of Gothenburg

ASCQ-Me and PROMIS in the Sickle Cell Disease Implementation Consortium Needs Assessment and Registry
Marsha Treadwell, PhD, Children’s Hospital Oakland Research Institute
Ellen Werner, PhD, MA, National Heart, Lung, and Blood Institute

Track C: Deploying Digital Tools

The HealthMeasures API: Overview and User Experiences
Michael Bass, MS, Northwestern University

University of Utah
Rebecca Johnson, MPH, University of Utah
Joshua Spuhl, University of Utah

University of Rochester
Jeff Houck, PT, PhD, George Fox University

NYU Langone Health
Heather Gold, PhD, NYU School of Medicine
Raj Karia, MPH, NYU School of Medicine

HealthMeasures Scoring Service Demo

Track D: Driving the Science

Advancing the Science of Pediatric Patient-Reported Outcomes for Children with Chronic Diseases: Update from the PEPR ConsortiumUpdate from the PEPR Consortium
Brandon Becker, PhD, MPH, Children’s Hospital of Philadelphia
Michelle Campbell, PhD, Center for Drug Evaluation and Research, U.S. Food and Drug Administration (FDA)
Richard Gershon, PhD, Northwestern University
Laura Schanberg, MD, Duke University Medical Center
Carole Tucker, PT, PhD, Temple University
James Witter, MD, PhD, National Institute of Arthritis and Musculoskeletal and Skin Diseases

Pre-Conference Workshop

Introduction to Person-Centered Assessment

A 90-minute webinar, Introduction to Person-Centered Assessment is now available for anyone looking for a brief introduction and practical tips to help them select, administer, score, and interpret PROMIS, Neuro-QoL, ASCQ-Me and NIH Toolbox measures in clinical and research settings.

Nan Rothrock, PhD, Northwestern University
Karon Cook, PhD, Northwestern University

We thank the following organizations for their contributions as 2017 HealthMeasures User Conference sponsors: Bristol-Myers Squibb, Corporate Translations, Oberd, BrightOutcome, Pfizer,

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