Data Collection Tools

HealthMeasures recently announced a new sustainability model featuring this website, which delivers free access to hundreds of self- and proxy-report measures and information to help you select, administer, score, and interpret those measures. Beginning January 1, 2017, utilization of Assessment CenterSM and other assessment delivery services will carry fees associated with maintaining and updating these technologies.

Learn more about free and fee-based services offered by HealthMeasures.

HealthMeasures are currently available in many data collection tools.

Use the Search & View Measures feature to identify what data collection tools include the measure(s) you want.

Assessment CenterSM

  • A web-based data collection platform housing PROMIS®, Neuro-QoL, and ASCQ-MeSM.
  • Assessment Center offers features that support data collection in research settings including establishing specific time frames for assessments, randomizing measures, and supporting online consent forms. It is less well suited for data collection in routine clinical practice. Spanish data collection is available. There is a fee for use. Read more about pricing information here

NIH Toolbox® iPad App

  • The NIH Toolbox iPad App is the best way to access all NIH Toolbox measures. It is available in the iTunes store. Learn more.
  • All users of the NIH Toolbox should utilize the NIH Toolbox iPad App.

PROMIS iPad App

  • The PROMIS iPad app enables on-demand assessments. An administrator can select any PROMIS measure and hand the iPad over to a respondent for completion. Results are available immediately in multiple formats.
  • The PROMIS iPad app is available in the iTunes store. 
  • Additional measures including Neuro-QoL and NIH Toolbox are included.

 Assessment CenterSM API: Integrating HealthMeasures in Other Data Collection Systems

  • HealthMeasures offers an Application Programming Interface (API) that allows your data collection system to administer all self- and proxy-reported HealthMeasures (PROMIS, Neuro-QoL, ASCQ-Me). This enables computer adaptive tests (CATs) in other data collection systems. Learn more.
  • Use of the API enables access to the most up-to-date HealthMeasures content including new measures.
  • Integration requires effort from your local IT team and a licensing fee.

REDCap

  • A web-based data collection platform housing PROMIS and Neuro-QoL measures. Search the REDCap Library for PROMIS and Neuro-QoL to identify available measures. This content is made available through the Assessment Center API (see below). REDCap is hosted by Vanderbilt.
  • “Adaptive Instrument” is a computer adaptive test.
  • “Auto-scoring” means the measure is a short form and a total score will be calculated.
  • REDCap is a great solution for research and clinical data collection. It includes most HealthMeasures (including computer adaptive tests) and calculates scores. It also has a number of other features to facilitate tracking participants or including multiple types of data.
  • You can use REDCap for data collection of custom PROMIS and Neuro-QoL short forms and have those measures scored with the HealthMeasures Scoring Service by following these instructions.

Epic

  • An electronic health record software housing selected PROMIS measures in its platforms starting in 2012. Talk with your local Epic team to learn more.
  • Epic is a good solution for assessment during clinical care. Measures are scored and viewable immediately. Establishing what HealthMeasures should be used for what patients at what times requires effort from your local Epic team. The cost for using Epic automatically includes the Questionnaires component.

AO Patient Outcomes Center (AOPOC)

  • A web-based data collection tool housing commonly utilized patient-reported outcome measures targeting orthopaedic populations. It includes selected PROMIS measures including computer adaptive tests. Measures are scored and graphed.
  • AOPOC is a good solution for data collection in orthopaedic clinical practice. There is a licensing fee.

MyGIiHealth

  • A free iOS smartphone app that allows patients to report gastrointestinal (GI) symptoms using PROMIS GI measures. Patients can forward their scores to physicians who use PROMIS to guide clinical decision-making.

Department of Defense (DoD)

  • Limited PROMIS instruments are available for clinical use within the Health and Readiness Medical Survey System (HERMES) at no additional cost to DoD-based clinicians. Please contact Rick Barnhill (richard.l.barnhill.civ@mail.mil) for additional information.
  • Clinical researchers have access to most PROMIS and Neuro-QoL instruments through a copy of REDCap hosted by the Uniformed Services University of the Health Sciences. Please contact Joshua Suen (jsuen@dvcipm.org) for additional information.

Outcomes Based Electronic Research Database (OBERD)

  • OBERD optimizes patient compliance for outcomes data capture and provides access to most PROMIS and Neuro-QoL instruments at no additional charge to their licensees. There is also no charge for student or other non-commercial research projects. Please contact Brian McCuiston (sales@oberd.com) for additional information.

Paper Forms

  • PROMIS, Neuro-QoL, ASCQ-Me, and self-report NIH Toolbox measures are available in a respondent-ready PDF format. Use the Search & View Measures feature to find measures of interest.
  • Paper forms have minimal technology requirements. However, they require staff time for data entry and scoring. Scores may not be immediately available. Paper forms can be scored with the HealthMeasures Scoring Service powered by Assessment Center.