Data Collection Tool Costs
Free, administration-ready PDFs of most self- and proxy-report instruments for all measurement systems are available in Search and View Measures. The measures may be used in paper form.
Measure PDF Download ............... FREE
- Assessment Center Computer Adaptive Test (CAT) Demonstration Page can be used to view a demonstration of how the popular PROMIS computerized adaptive tests (CATs) are administered and scored in real time, but it is not practical for data collection.
Assessment Center CAT Demo ............... FREE
- Web-Based Administration and Study Management: Assessment Center provides access for all PROMIS and Neuro-QoL instruments for web-based administration and study management. New studies initiated after December 31, 2016, will be charged an annual fee, and continuing studies that go beyond December 31, 2016, will be charged a reduced fee. Users will be charged per study created in Assessment Center, not per grant. This fee will be waived for studies that complete data collection prior to April 1, 2017 and for students or K-awardees that are scheduled to complete data collection prior to July 1, 2017. These fees go to offset the cost of operating the website and data collection services. Please contact firstname.lastname@example.org for additional information.
New studies administered via Assessment Center ............... $5,000/year
Continuing studies administered via Assessment Center ............... $2,500/year
- NIH Toolbox users should not plan on using Assessment Center beyond December 31, 2017, after which time this functionality will be removed. NIH Toolbox users are encouraged to transition to the NIH Toolbox iPad App. Please contact email@example.com for additional information and help in migrating to the iPad version of the NIH Toolbox.
The Assessment Center Application Porgramming Interface (AC API) easily integrates with existing patient portals, survey systems and mobile apps to administer and score PROMIS and Neuro-QoL CATs and short forms. The AC API is used to operationalize access to HealthMeasures instruments for most of the implementations, listed below under Other Platforms for Access. An annual license fee is required. For additional information please contact firstname.lastname@example.org.
Annual API license ............... By Quote
The NIH Toolbox iPad App includes the NIH Toolbox instruments and many PROMIS instruments in an easy to use format suitable for in-clinic and office-based use, with significantly lower long-term costs (search “NIH Toolbox” in the iTunes App store for details). For more information about the App, go to the NIH Toolbox iPad App page.
NIH Toolbox iPad App (demonstration mode) ............... FREE
NIH Toolbox English iPad App (annual subscription per iTunes account) ............... $499
NIH Toolbox Spanish iPad App (annual subscription per iTunes account) ............... $499
Each subscription includes support for installation on up to 10 iPads. Studies that are administering instruments in both English and Spanish will need to purchase two subscriptions.
The PROMIS iPad App, slated for release in September 2016, will include a growing library of PROMIS instruments in an easy to use format suitable for in-clinic and office-based use. (Search “PROMIS” in the iTunes App store for details). A Spanish version of the PROMIS iPad App is coming in late 2016. Contact email@example.com for more information
PROMIS English iPad App (demonstration mode) ............... FREE
PROMIS English iPad App (annual subscription per iTunes account) ............... $499
Numerous organizations make PROMIS and Neuro-QoL CATs and short forms available to their researchers and clinicians. Please contact the organizations below for additional information, including which instruments are offered.
- REDCap Sites. Over 1,500 institutions use REDCap to make most PROMIS and Neuro-QoL instruments available for their researchers and clinicians, generally at little or no charge for local researchers and clinicians. Click here for the complete list of REDCap organizations and their contact information. The REDCap Library provides a search tool to view available PROMIS and Neuro-QoL instruments.
- Epic Electronic Health Record (Epic Systems Corporation). Clinicians at most of the 300 institutions that license Epic electronic medical record products are able to include selected PROMIS short forms in their clinical workflows at no additional charge. (Note: PROMIS CATs and item response theory (IRT) scored short-forms may be available in Epic after November, 2016). Please contact Nancy Smider for additional information (NSmider@epic.com) and include your CIO, CMIO or CRIO in the expression of interest. An annual license fee per Epic installation will be assessed. Pricing will be based upon institution size. Additional information will be available closer to final release.
- Department of Defense (DoD). Limited PROMIS instruments are available for clinical use within the Health and Readiness Medical Survey System (HERMES) at no additional cost to DoD-based clinicians. Please contact Rick Barnhill (firstname.lastname@example.org) for additional information. Clinical researchers have access to most PROMIS and Neuro-QoL instruments through a copy of REDCap hosted by the Uniformed Services University of the Health Sciences. Please contact Joshua Suen (email@example.com) for additional information.
Outcomes Based Electronic Research Database (OBERD). OBERD optimizes patient compliance for outcomes data capture and provides access to most PROMIS and Neuro-QoL instruments at no additional charge to their licensees. There is also no charge for student or other non-commercial research projects. Please contact Brian McCuiston (firstname.lastname@example.org) for additional information.
AO Patient Outcomes Center (AOPOC). Designed for use in orthopedic clinical care, AOPOC includes selected PROMIS CATs and short forms. Go to the AOPOC website for additional information.
- Custom Solutions. A number of organizations have also developed custom solutions to make many PROMIS and Neuro-QoL instruments available for clinical and research use. Contact email@example.com to learn more about these custom solutions.
The Data Collection Tools described above automatically generate final scores for HealthMeasures. Two additional methods for calculating scores are available for free. The first option is the HealthMeasures Scoring Service, a web-based tool that calculates scores for most PROMIS and Neuro-QoL off-the-shelf and custom short forms. An end-user uploads a file with responses and receives a scored file. The second free option is for users to calculate scores by hand using instructions in Scoring Manuals available at in the Calculate Scores page.
HealthMeasures Scoring Service ............... FREE
HealthMeasures Scoring Manuals (PDFs) ............... FREE
We offer training and consulting on all aspects of measurement, from instrument development to quantitative analysis of data, and planning for clinical research and clinical care. For advice beyond the initial consultation (e.g., on an ongoing basis during a funded grant period), HealthMeasures experts can be included as co-investigators on grant/contract submissions for a specified percent effort. Our consultants are trained in methods applied to the development of HealthMeasures tools, including qualitative and quantitative methods. This includes item response theory (IRT) methods and their many applications, such as custom short form development and computer adaptive testing (CAT). Our team also has expertise in clinical trial planning, including research design, psychometrics and regulatory strategy. For further information, please contact firstname.lastname@example.org.
Consultation and Analysis ............... Hourly Fee or Funded Percent Effort
Clinical Trial Planning ............... By Quote
We periodically offer workshops and training opportunities through HealthMeasures and the PROMIS Health Organization (PHO). These include instruction for the administration of NIH Toolbox, education on measurement topics (e.g., hands-on training to link the scores from different measures), and application of HealthMeasures (e.g., use of patient-reported outcomes in clinical practice). For custom workshops, including private training, please contact email@example.com.
Our information technology team has over a decade of experience developing solutions for a wide range of assessment and intervention projects in research, education, and clinical settings. Please contact firstname.lastname@example.org for additional information.
Custom Software ............... By Quote
CAT Algorithms, IRT Parameters, and Test Cases are available as part of the Assessment Center API license (see above). We do not directly provide CAT algorithms or CAT algorithm code. The algorithms and some of the parameters used in various HealthMeasures instrument systems are available in the published literature.
HealthMeasures does not directly translate its measures into other languages. However, we do manage all of the translation efforts to ensure quality and consistency. Referral to approved translation vendors can be made by HealthMeasures staff. In addition, we can provide information about what measures have translations available, and in what languages, and can provide information about the required translation methodology. For more information, please contact email@example.com.
Our translation-related services include:
- Distribution of non-English versions of HealthMeasures with certification ............... By Quote
- Consultation on translation methodology ............... By Quote
- Quality review and cross-cultural harmonization of translations ............... By Quote
- Item translatability review (cost based on # of items and languages) ............... By Quote
Researchers may be interested in having a measure they developed disseminated through various HealthMeasures mechanisms. There are four options for dissemination:
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- Limited Access
Contact firstname.lastname@example.org for more information.