ASCQ-MeSM (Adult Sickle Cell Quality of Life Measurement Information System) is a patient-reported outcome measurement system that evaluates and monitors the physical, mental, and social well-being of adults with sickle cell disease (SCD).
drhays replied the topic: Is there an ASCQ-Me for children?
Well, that link is to an article about the PedsQL™ Sickle Cell Disease Module. What about ASCQ-Me? There is an article that reports on adult respondents (Keller et al., 2014, Health and Quality of Life Outcomes, 12: 125). Is there an ASCQ-Me for children?
HealthMeasures replied the topic: Is there an ASCQ-Me for children?
There is a PRO assessment for children with SCD. Two forms of this assessment exist: one for child self report, tested in children ages 8 to 18; and one for parents to report on their child’s health (child proxy report), tested for children ages 2 through 18. More information on this assessment may be found in a publication that is free for download at this link: