ASCQ-Me

ASCQ-MeSM (Adult Sickle Cell Quality of Life Measurement Information System) is a patient-reported outcome measurement system that evaluates and monitors the physical, mental, and social well-being of adults with sickle cell disease (SCD).

Is there an ASCQ-Me for children?

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2 months 4 days ago #718
maithrireddie replied the topic: Is there an ASCQ-Me for children?

Children down to the age of 18 were included in the field test for ASCQ-Me. But ASCQ-Me questions could be appropriate down to the age of 15. We welcome testing of ASCQ-Me in the age range of 15-17.

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3 years 6 months ago #165
drhays replied the topic: Is there an ASCQ-Me for children?

Well, that link is to an article about the PedsQL™ Sickle Cell Disease Module. What about ASCQ-Me? There is an article that reports on adult respondents (Keller et al., 2014, Health and Quality of Life Outcomes, 12: 125). Is there an ASCQ-Me for children?

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4 years 1 month ago #99
HealthMeasures replied the topic: Is there an ASCQ-Me for children?

There is a PRO assessment for children with SCD. Two forms of this assessment exist: one for child self report, tested in children ages 8 to 18; and one for parents to report on their child’s health (child proxy report), tested for children ages 2 through 18. More information on this assessment may be found in a publication that is free for download at this link: www.ncbi.nlm.nih.gov/pmc/articles/PMC441...pdf/nihms-682935.pdf

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4 years 1 month ago #89
dmc created the topic: Is there an ASCQ-Me for children?

Is there an ASCQ-Me for children?

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