PROMIS

The Patient-Reported Outcomes Measurement Information System (PROMIS®) includes measures of physical, mental, and social health for adults and children.

Using the pediatric profile with older ages?

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7 months 3 weeks ago #678
nanrothrock replied the topic: Using the pediatric profile with older ages?

In 2018, Reeve and colleagues published linking tables for pediatric and adult physical health measures in Quality of Life Research.
www.ncbi.nlm.nih.gov/pubmed/30539361

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3 years 3 months ago #203
HealthMeasures replied the topic: Using the pediatric profile with older ages?

There have been some efforts to link scores on PROMIS pediatric measures with PROMIS adult measures. Bryce Reeve and colleagues published results in emotional distress (attachment below). The Peds Perceived Cognitive Function measure (a measure developed prior to PROMIS Pediatric Cognitive Function) is also linked to adult Cognitive Function in PROMIS and Neuro-QoL.

Contact HealthMeasures at help@healthmeasures.net if you are interested in developing additional linking tables.

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Last Edit: 3 years 1 month ago by .

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3 years 3 months ago #202
bbreeve replied the topic: Using the pediatric profile with older ages?

The PROMIS adult measures are for 18 years or older and the PROMIS pediatric measures are evaluated and recommended for children/adolescents between 8-17 years of age. We would recommend qualitative and quantitative studies to examine the performance of the adult PROMIS measures in adolescents below 18 years of age. A key question would be what would be the lowest age for which we are comfortable administering the adult PROMIS measures and the adolescent is able to read and understand the question and response categories, and provide a valid response. On a similar topic, the PROMIS linkage study (linking the adult and pediatric PROMIS measures), adolescents as young as 14 years and older completed the adult and pediatric PROMIS measures. This data was used to create the links.

In a separate study with a non-PROMIS measure (but likely similar literacy levels of the items as PROMIS items), we felt comfortable adolescents as young as 16 years will typically have little problems completing the adult forms. We recommend adolescents less than 16 years to complete the pediatric PRO measure (non-PROMIS). More highly literate 14-15 year olds will likely have little problems with the adult measures, but it is difficult to know an adolescent’s literacy levels in advance.

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4 years 1 month ago #33
HealthMeasures replied the topic: Using the pediatric profile with older ages?

We don’t have data yet (as of August 2015) on how the pediatric instruments perform in an 18-21 year-old age group. You could use the pediatric profile for this age group and note that it hasn’t been tested in this group yet. Alternately, you could administer an adult instrument. Note that the scores on adult measures are independent from scores on pediatric measures. You should not group them together for analyses (e.g., a T=40 on a ped measure does not equal T=40 on an adult measure.

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4 years 1 month ago #26
dmc created the topic: Using the pediatric profile with older ages?

How does the pediatric profile (or other pediatric instruments) function with older populations such as 18-21 year olds?

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