PROMIS

The Patient-Reported Outcomes Measurement Information System (PROMIS®) includes measures of physical, mental, and social health for adults and children.

Pediatric scoring compatibility over time

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6 months 3 weeks ago #695
nanrothrock replied the topic: Pediatric scoring compatibility over time

Because pediatric self-report and parent proxy report are not equivalent, data from these measures should be analyzed separately. That is, if you have a sample where half of the participants completed a self-report measure of anxiety and half had a parent-proxy report of anxiety, don't lump all anxiety scores together and ignore who provided the data.

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1 year 2 weeks ago #618
HealthMeasures replied the topic: Pediatric scoring compatibility over time

Pediatric self-report is considered the standard for measuring patient-reported outcomes among children. For proxy report, circumstances do exist when the child is too young (as you note, below age 8), cognitively impaired, or too ill to complete a patient-reported outcome instrument. Self- and proxy- report are not identical and you should be cautious about treating scores that way.

You could collect both self- and proxy- report for some of your sample if you wanted to evaluate the difference between the measures. While information derived from self-report and proxy-report is not equivalent, it is optimal to assess both the child and the parent since their perspectives may be independently related to healthcare utilization, risk factors, and quality of care.

Darren Dewalt has done considerable work in the use of PROMIS in pediatric populations. You can look into his work further to see if he's published papers comparing scores between self- and proxy report.

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1 year 2 weeks ago #617
molly.mcguire created the topic: Pediatric scoring compatibility over time

When a child who completed the proxy profile turns 8, is it recommended to begin using the Pediatric profile for repeat visits? Longitudinally, are the scores comparable?

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