zukj replied the topic: PROMIS for very young children (<5 yrs)
Thanks for your response. Sounds like we will have to come up with another approach for families with the younger children because I really don't want to exclude them completely. These families tend to be under-represented in studies, especially in the NICU population, so I'm leaning towards developing a more qualitative approach with semi-structured interviews but will do a more extensive lit review to see what's out there.
HealthMeasures replied the topic: PROMIS for very young children (<5 yrs)
For child self-report, NIH Toolbox Life Satisfaction is appropriate for children as young as 3 years, which may be a good option for you. However, that does not cover 1-2 years. The PROMIS Positive Affect parent proxy is the most appropriate existing PROMIS pediatric instrument to cover (one component of) well-being. That said, unfortunately there is no way within PROMIS to accurately score anything for kids under 5 since the existing banks were calibrated and normed with parents of 5+yr olds.
zukj created the topic: PROMIS for very young children (<5 yrs)
We would like to use the pediatric and parent proxy Life Satisfaction, Pain Interference, and Physical Function measures in our clinic but would also like to include younger children, age range 1 mo to <5 yrs. Can we use the Parent proxy measure alone for these children/infants? What do you recommend?