PROMIS

The Patient-Reported Outcomes Measurement Information System (PROMIS®) includes measures of physical, mental, and social health for adults and children.

Adult Proxy

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6 months 2 weeks ago #697
nanrothrock replied the topic: Adult Proxy

A 2019 publication found proxy respondents for adults who had a stroke reported more severe symptoms on the PROMIS Global scale that patient self-report.
Lapin, B.R., Thompson, N.R., Schuster, A. et al. Patient versus proxy response on global health scales: no meaningful DIFference. Qual Life Res (2019). doi.org/10.1007/s11136-019-02130-y

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3 years 7 months ago #144
drhays replied the topic: Adult Proxy

Yes and there are several studies showing that including:
Hays, R. D., Vickrey, B., Hermann, B., Perrine, K., Cramer, J., Meador, K., Spritzer, K., & Devinsky, O. (1995). Agreement between self reports and proxy reports of quality of life in epilepsy patients. Quality of Life Research, 4, 159-168.

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3 years 8 months ago #138
Yount replied the topic: Adult Proxy

PROMIS did not develop measures intended to be completed by caregivers or other people on behalf of adult respondents. The literature suggests there may be differences between how "patients" respond compared to proxies, especially for domains that are less apparent to others, such as pain, fatigue and emotional distress.

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3 years 8 months ago #130
San Keller created the topic: Adult Proxy

I want to use PROMIS measures in adults who can not respond for themselves. Are there adult proxy forms available?

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