ASCQ-Me® (Adult Sickle Cell Quality of Life Measurement Information System) is a patient-reported outcome measurement system that evaluates and monitors the physical, mental, and social well-being of adults with sickle cell disease (SCD). 

Why Use ASCQ-Me?

  • Developed and validated with state-of-the-science methods to be psychometrically sound

  • Designed to be comprehensive when used with PROMIS®

  • Created to be complementary with physiological measures of disease severity

  • Supports treatment planning as well as clinical and health services research


ASCQ-Me is a registered trademark of the U.S. Department of Health & Human Services (HHS).


Last updated on 3/27/2023