HLM4118 ASCQ Me R

Sidebar ASCQ-Me

ASCQ-Me® Publications

Bartlett, R., Ramsay, Z., Ali, A., Grant, J., Rankine-Mullings, A., Gordon-Strachan, G., & Asnani, M. (2021). Health-related quality of life and neuropathic pain in sickle cell disease in Jamaica. Disability and Health Journal, 101107. https://pubmed.ncbi.nlm.nih.gov/33867318/

Bulgin, D., Asnani, M., Vorderstrasse, A., Royal, C., Pan, W., & Tanabe, P. (2021). Stigma and quality of life in adults with sickle cell disease in Jamaica and the United States. Psychology, Health and Medicine, 1-15. https://pubmed.ncbi.nlm.nih.gov/34957879/

Bulgin, D., Douglas, C., & Tanabe, P. (2019). A pilot test of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) and the Jenerette Self-Care Assessment (J-SAT) Tools in adults with sickle cell disease. Pilot and Feasibility Studies, 5, 85-85. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6610829/

Cooper, O., McBain, H., Tangayi, S., Telfer, P., Tsitsikas, D., Yardumian, A., & Mulligan, K. (2019). Psychometric analysis of the adult sickle cell quality of life measurement information system (ACSQ-Me) in a UK population. Health and Quality of Life Outcomes. 17, 74. https://doi.org/10.1186/s12955-019-1136-7

Curtis, S., & Brandow, A.M. (2017). Responsiveness of Patient-Reported Outcome Measurement Information System (PROMIS) Pain Domains and Disease-Specific Patient-Reported Outcome Measures in Children and Adults with Sickle Cell Disease. ASH Education Program Book, 2017(1), 542-545. https://www.ncbi.nlm.nih.gov/pubmed/29222303

Darbari, D.S., & Brandow, A.M. (2017). Pain-Measurement Tools in Sickle Cell Disease: Where Are We Now? ASH Education Program Book, 2017(1), 534-541. https://www.ncbi.nlm.nih.gov/pubmed/29222302

Eckman, J.R., Hassell, K.L., Huggins, W., Werner, E.M., Klings, E.S., Adams, R.J., . . . Hamilton, C.M. (2017). Standard Measures for Sickle Cell Disease Research: The Phenx Toolkit Sickle Cell Disease Collections. Blood Advances, 1(27), 2703-2711.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5745137/

Esham, K. S., Rodday, A. M., Smith, H. P., Noubary, F., Weidner, R. A., Buchsbaum, R. J., & Parsons, S. K. (2020). Assessment of health-related quality of life among adults hospitalized with sickle cell disease vaso-occlusive crisis. Blood Advances, 4(1), 19-27. https://www.ncbi.nlm.nih.gov/pubmed/31891655

Esham, K.S., Rodday, A.M., Weidner, R.A., Buchsbaum, R.J., Smith, H.P., & Parsons, S.K. (2017). Assessment of Health-Related Quality of Life in Adults Hospitalized with Sickle Cell Disease Vaso-Occlusive Crisis. Blood, 130(Suppl 1), 2138-2138. http://www.bloodjournal.org/content/130/Suppl_1/2138

Esham, K.S., Rodday, A.M., Weidner, R.A., Buchsbaum, R.J., Smith, H.P., & Parsons, S.K. (2016). Health-Related Quality of Life (HRQL) among Hospitalized Adults with Sickle Cell Disease (SCD): Incorporating Patient-Reported Outcome (PRO) Measures in Clinical Care. Blood, 128(22), 5962-5962. http://www.bloodjournal.org/content/128/22/5962

Evensen, C.T., Treadwell, M.J., Keller, S., Levine, R., Hassell, K.L., Werner, E.M., & Smith, W.R. (2016). Quality of Care in Sickle Cell Disease: Cross-Sectional Study and Development of a Measure for Adults Reporting on Ambulatory and Emergency Department Care. Medicine, 95(35), e4528. https://www.ncbi.nlm.nih.gov/pubmed/27583862

Hanmer, J., Jensen, R. E., Rothrock, N., & HealthMeasures, T. (2020). A reporting checklist for HealthMeasures' patient-reported outcomes: ASCQ-Me, Neuro-QoL, NIH Toolbox, and PROMIS. Journal of patient-reported outcomes, 4(1), 21-21. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7096598/

Keller, S., Yang, M., Treadwell, M.J., & Hassell, K.L. (2017). Sensitivity of Alternative Measures of Functioning and Wellbeing for Adults with Sickle Cell Disease: Comparison of PROMIS® to ASCQ-Me℠. Health and Quality of Life Outcomes, 15(1), 117. https://www.ncbi.nlm.nih.gov/pubmed/28577358

Keller, S.D., Yang, M., Treadwell, M.J., Werner, E.M., & Hassell, K.L. (2014). Patient Reports of Health Outcome for Adults Living with Sickle Cell Disease: Development and Testing of the ASCQ-Me℠ Item Banks. Health and Quality of Life Outcomes, 12, 125. http://dx.doi.org/10.1186/s12955-014-0125-0

Knisely, M. R., Pugh, N., Kroner, B., Masese, R., Gordeuk, V., King, A. A., . . . Treadwell, M. (2020). Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium. American Journal of Hematology. https://pubmed.ncbi.nlm.nih.gov/32449965/

Mulder, N., Nembaware, V., Adekile, A., Anie, K.A., Inusa, B., Brown, B., . . . Derebail, V.K. (2016). Proceedings of a Sickle Cell Disease Ontology Workshop—Towards the First Comprehensive Ontology for Sickle Cell Disease. Applied & translational genomics, 9, 23-29.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4911424/

Oyeku, S.O., & Faro, E.Z. (2017). Rigorous and Practical Quality Indicators in Sickle Cell Disease Care. ASH Education Program Book, 2017(1), 418-422. https://www.ncbi.nlm.nih.gov/pubmed/29222287

Ramsay, Z., Bartlett, R., Ali, A., Grant, J., Gordon-Strachan, G., & Asnani, M. (2021). Sickle Cell Disease and Pain: Is it all Vaso-occlusive Crises? Clinical Journal of Pain, 37(8), 583-590. https://pubmed.ncbi.nlm.nih.gov/34008506/

Rizio, A. A., Bhor, M., Lin, X., McCausland, K. L., White, M. K., Paulose, J., . . . Bronté-Hall, L. (2020). The relationship between frequency and severity of vaso-occlusive crises and health-related quality of life and work productivity in adults with sickle cell disease. Quality of Life Research. https://www.ncbi.nlm.nih.gov/pubmed/31933113

Rodgers-Melnick, S. N., Lin, L., Gam, K., Souza de Santana Carvalho, E., Jenerette, C., Rowland, D. Y., Little, J. A., Dusek, J. A., Bakshi, N., & Krishnamurti, L. (2022). Effects of Music Therapy on Quality of Life in Adults with Sickle Cell Disease (MUSIQOLS): A Mixed Methods Feasibility Study. Journal of Pain Research, 15, 71-91. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8760983/

Rodigari, F., Brugnera, G., & Colombatti, R. (2022). Health-related quality of life in hemoglobinopathies: A systematic review from a global perspective. Frontiers in pediatrics, 10, 886674. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9452907/

Singh, S. A., Bakshi, N., Mahajan, P., & Morris, C. R. (2020). What is the future of patient-reported outcomes in sickle-cell disease? Expert Review of Hematology, 1-9. https://pubmed.ncbi.nlm.nih.gov/33034214/

Treadwell, M.J., Hassell, K., Levine, R., & Keller, S. (2014). Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me): Conceptual Model Based on Review of the Literature and Formative Research. Clinical Journal of Pain, 30(10), 902-914. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4993284/

 

Presentations

Treadwell MJ, Werner EM (2017). Sickle Cell Disease Implementation Consortium. HealthMeasures User Conference, Chicago, IL.

Keller SD, Treadwell MJ, Yang M, Werner EM, Hassell K (2014). Psychometric properties of the adult sickle cell quality of life measurement system.  Second Global Congress on Sickle Cell Disease, Rio de Janeiro, Brazil.

Keller SD, Yang M, Evensen C, Treadwell MJ (2012). Are condition-specific measures necessary to the practice of personalized medicine? Presented at the International Society of Quality of Life Research, Budapest, Hungary.

Keller SD, Evensen C, Levine RE, Treadwell MJ (2012).  Measuring the Quality of Care Delivered to Patients Suffering from a Rare Disease.  Presented at the International Society of Quality of Life Research, Budapest, Hungary.

Keller SD, Levine RE. (2011). The grounded item technique for generating content valid questions. Presented at the International Society of Quality of Life Research, Denver, CO.

Yang M, Keller SD (August 2011).  Development of an “R” –Based Computer Adaptive Assessment of Health Based on Patient Reports of their Functioning and Wellbeing. American Psychological Association 119th Annual Convension.  Washington, D.C.

Treadwell MJ, Levine RE, Keller SD, Hassell K, Werner EM. (2010). Understanding perspectives of adults with sickle cell disease in developing a disease specific quality of life measurement system.  Presented at the International Society of Quality of Life Research, London, UK.

Keller SD..Werner EM. (March, 2010).  Adult Sickle Cell HRQoL Measurement (ASCQ-Me):  Methods and Validation. National Conference on Blood Disorders in Public Health.  Atlanta, GA. 

Keller SD, Werner EM (March, 2008). Building on PROMIS: ASCQ-Me. The 2nd PROMIS Conference, Bethesda, MD.

Levine RE, Treadwell MJ. (August, 2007). Health Related Quality of Life.  Paper presented the 4th Annual Sickle Cell Disease Symposium, Oakland, CA.

Levine, R.L., M.J. Treadwell, C. Moucheraud, S.D. Keller, Werner EM (September, 2006). Sickle Cell Disease Health-Related Quality of Life Questionnaire Development Project. SCDAA 34th Annual Convention, Dallas, TX. 

Maurer M, Levine RE, Keller SD, Treadwell, MJ, Hassell K, E.M. Werner, (October,  2007) Application of Cognitive Interviewing Techniques to Ensure the Reliability and Validity of HRQOL Questionnaire Responses. Presented at the International Society of Quality of Life Research, Toronto, Canada. 

Werner EM, Treadwell MJ, Hassell K, Keller SD, Levine RL (December, 2006). Sickle Cell Disease Health-Related Quality of Life Questionnaire Development Project. American Society of Hematology 48th Annual Meeting, Orlando, FL.

 

Last updated on 01/11/2023