PROMIS® measures are available in languages other than English.
Translations result from a process of forward and back-translation, multiple expert reviews, harmonization across languages, and cognitive debriefing with a sample of native speakers of the target language (linguistic validation). A universal approach to translation ensures that, whenever possible, one language version is created for multiple countries instead of country-specific versions of the same language.
Translations in Progress
Numerous groups are currently translating selected PROMIS measures into a variety of languages including Bengali, Czech, Georgian, Hindi, Nepali, Odia, Punjabi, Romanian, Sinhala and Xhosa, to name a few. Contact us for more information about translating measures.
PROMIS measures in Spanish are available in PDF format. Respondent-ready versions of measures in other languages are available by request. Learn more>>
If you are interested in obtaining a language not listed on the availability tables, or if you want to translate a measure, please contact email@example.com.
HealthMeasures does not directly translate its measures into other languages. However, we do manage all of the translation efforts to ensure quality and consistency. Referral to approved translation vendors can be made by HealthMeasures staff.
The Department of Medical Social Sciences at Northwestern University Feinberg School of Medicine is currently charged with managing the scientific activity surrounding HealthMeasures translations. Please direct all inquiries firstname.lastname@example.org.
For new translations, we issue a letter of permission to translate specifying the name(s) of the measure(s) that can be translated and into which language(s). The permission to translate is valid for six months and can be renewed. We will also provide item definitions and other documentation to facilitate accurate translation.
The FACIT Translation Methodology (see Eremenco et al, 2005) has been adopted by PROMIS, Neuro-QoL™ and NIH Toolbox® patient-reported outcome (PRO) measures. It consists of an iterative process of forward and back-translation, multiple reviews, harmonization across languages, and cognitive debriefing with a sample of the target population. Another important aspect to consider is that the approach to translation is universal, which means we aim for language versions that are appropriate for more than one country, rather than country-specific versions of each language. The vendor or group in charge of the translation will need to comply with those directives even if they are used to a different methodology. Descriptions of consensus-based best practices in translation methods are available (see Eremenco et al, 2018 for PRO measures and McKown et al, 2020 for observer-reported outcome, clinician-reported outcome, and performance outcome measures).
For new translations, we conduct a quality review of each translation and verify harmonization across languages for a fee (please see Fees section below). The review focuses on verifying consistency in the translation of similar items within the item bank, consistency with previous translations, harmonization with other languages, and whether the documentation of the decision making process is complete. This includes reviewing the cognitive debriefing report.
New translations can be conducted by professional translators or by a group of researchers who are native speakers of the target language and have translation expertise. Regardless of who performs the translation, the methodology, the expectations for documenting the various steps of the translation, and the quality and approval review process are the same.
Distribution fee - English and Spanish are the only languages available for free PDF download. For all other available languages, as of September 1, 2020, we charge a distribution fee of $800 USD per instrument, per language. This distribution fee applies to any PDF that is not currently available for direct download on HealthMeasures.net. The fee can be waived in some cases, such as for individual use by students or academic investigators. Commercial users and corporations (for-profit and not-for-profit) are normally expected to pay distribution fees. The distribution fee covers the distribution of the instrument(s), the preparation of the license agreement, and the certification of translation(s). All costs are submitted in a quote prior to service. If a license agreement is needed, it will be prepared once acceptance of the quote is confirmed.
Quality Review and Harmonization fee - For new translations, we conduct a quality review of each translation and verify harmonization across languages. The review fee is estimated based on a per hour fee vs. the number of items and languages to translate. Time for preparing materials for new translations (i.e., cross-referencing instruments, gathering items already translated for each language, and selecting relevant item definitions) is also included. All costs are submitted in a quote prior to service.
Tech Integration fee – Users who want to integrate HealthMeasures instruments into their own technology need to request written permission to integrate the instrument(s) into their proprietary electronic administration system. The fee charged for the review and approval process varies depending on some specific factors of the study. This fee covers the time spent preparing permissions, providing guidance on design, reviewing screenshots (only the English version that serves as template), and certifying correct scoring. All costs are submitted in a quote prior to service.