List of Parent Proxy Report Measures
Available Early Childhood Parent-Report (Ages 1-5) and Parent Proxy (Ages 5-17) Measures for PROMIS® Core Domains
| Early Childhood Parent-Report and Parent Proxy Domains | Definition | Early Childhood Parent-Report (ages 1-5) |
Parent Proxy for Pediatric Patients (ages 5-17) |
|||
| CAT (# items in bank) |
Short Form or Scale (# items) |
CAT (# items in bank) |
Screen-to-CAT (# items in bank) |
Short Form or Scale (# items) |
||
| Mental Health | ||||||
| Emotional Distress – Anxiety | Fear (fearfulness, panic), anxious misery (worry, dread), hyperarousal (tension, nervousness, restlessness), and somatic symptoms related to arousal (racing heart, dizziness). | ♦ (14) |
♦ (4, 8) |
♦ (13) |
♦ (13) |
♦ (8) |
| Emotional Distress – Depression | Negative mood (sadness, guilt), views of self (self-criticism, worthlessness), and social cognition (loneliness, interpersonal alienation), as well as decreased positive affect and engagement (loss of interest, meaning, and purpose). | ♦ (10) |
♦ (4, 8) |
♦ (13) |
♦ (13) |
♦ (8) |
| Physical Health | ||||||
| Fatigue | Range of symptoms, from mild subjective feelings of tiredness to an overwhelming, debilitating, and sustained sense of exhaustion. | ♦ (23) |
♦ (23) |
♦ (10) |
||
| Pain Intensity | How much a person hurts. | P (1) |
||||
| Pain Interference | Consequences of pain on relevant aspects of one’s life. This includes the extent to which pain hinders engagement with social, cognitive, emotional, physical, and recreational activities. | ♦ (13) |
♦ (13) |
♦ (8) |
||
| Physical Function – Mobility | Activities of physical mobility such as getting out of bed or a chair to activities such as running. | ♦ (20) |
♦ (20) |
♦ (7) |
||
| Social Health | ||||||
| Peer Relationships | Quality of relationships with friends and other acquaintances. | ♦ (4) |
♦ (14) |
♦ (14) |
♦ (7a) |
|
♦ Measure is derived from a calibrated item bank.
P This measure is an item pool. An item pool is a collection of items that are not scored.
Table last updated on 8/20/2025
Available Early Childhood Parent-Report (Ages 1-5) and Parent Proxy (Ages 5-17) Measures for PROMIS Additional Domains
| Early Childhood Parent-Report and Parent Proxy Domains | Definition | Early Childhood Parent-Report for Pediatric Patients (ages 1-5) |
Parent Proxy for Pediatric Patients (ages 5-17) |
||
|
CAT |
Short Form or Scale (# items) |
CAT |
Short Form or Scale |
||
| Global Health | |||||
| Global Health | Overall evaluation of physical, mental health, and social health. | S (8) |
S (7, 9*) |
||
| Early Childhood Parent-Report and Parent Proxy Domains | Definition | Early Childhood Parent-Report for Pediatric Patients (ages 1-5) |
Parent Proxy for Pediatric Patients (ages 5-17) |
||
| CAT (# items in bank) |
Short Form or Scale (# items) |
CAT (# items in bank) |
Short Form or Scale (# items) |
||
| Mental Health | |||||
| Cognitive Function | Difficulties in cognitive abilities (e.g., memory, attention, and decision making), and difficulties in the application of such abilities to everyday tasks (e.g., planning, organizing, calculating, remembering, and learning). |
♦ |
♦ (7) |
||
| Emotional Distress – Anger | Angry mood (irritability, frustration, grouchiness), negative social cognitions (interpersonal sensitivity, envy, disagreeableness), behavior (tantrums), and efforts to control anger. | ♦ (16) |
♦ (4, 8) |
S (5) |
|
| Engagement - Curiosity | Young children's emotional, behavioral, and cognitive curiosity and interest, and initiative taking. | S (6) |
|||
| Engagement - Persistence | Young children's sustained engagement and effort in problem solving and completing challenging activities and self-confidence | S (6) |
|||
| Life Satisfaction | Global and context-specific evaluations of a child’s life. Conceptual facets include global evaluations of life, context-specific evaluations of life, assessments of life conditions, and comparisons of one’s life with others’ lives. | ♦ (42) |
♦ (4, 8a, 8b) |
||
| Meaning and Purpose | A child's sense that life has purpose and there are good reasons for living, including hopefulness, optimism, goal-directedness, and feelings that one’s life is worthy. | ♦ (44) |
♦ (4, 8) |
||
| Positive Affect | Momentary positive or rewarding affective experiences, such as feelings and mood associated with pleasure, joy, elation, contentment, pride, affection, happiness, engagement, and excitement. | ♦ (13) |
♦ (4, 8) |
♦ (39) |
♦ (4, 8) |
| Psychological Stress Experiences | The thoughts or feelings about self and the world in the context of environmental or internal challenges. Items represent 3 facets of psychological stress reactions: feeling overwhelmed, perceived lack of control of capacity to manage one’s life, and cognitive-perceptual disruption. | ♦ (12) |
♦ (4, 8) |
||
| Self-Regulation – Flexibility | Young children's ability to adapt in response to environmental demands, changes, and expectations. | S (5) |
|||
| Self-Regulation – Frustration Tolerance | Young children's recognition and regulation of emotions and behaviors in service of their goals (coping). | S (6) |
|||
|
Stigma
|
Perceptions of self and publicly enacted negativity, prejudice, and discrimination as a result of disease-related manifestations. Bank includes generic items for children with chronic conditions. |
♦ |
♦ |
||
| Stigma – Skin | Perceptions of self and publicly enacted negativity, prejudice, and discrimination as a result of disease-related manifestations. Bank includes generic items for children with chronic conditions, as well as skin-specific items. | ♦ (22) |
♦ (8a, 8b) |
||
| Early Childhood Parent-Report and Parent Proxy Domains | Definition | Early Childhood Parent-Report for Pediatric Patients (ages 1-5) |
Parent Proxy for Pediatric Patients (ages 5-17) |
||
| CAT (# items in bank) |
Short Form or Scale (# items) |
CAT (# items in bank) |
Short Form or Scale (# items) |
||
| Physical Health | |||||
| Asthma Impact | Asthma-specific symptoms that include cough, wheeze, shortness of breath, and avoidance of triggers. Also, asthma-associated impacts such as missing school or activities with other children. | ♦ (17) |
♦ (8) |
||
| Itch | Parents’ perception of itch (pruritus) symptoms and their impact on children’s daily living; includes items for parents' perception of their children with skin conditions. | ♦ (45◊) |
♦ (3NRS, 6, 8a, 8b) |
||
| Pain – Behavior | Behaviors that typically indicate to others that an individual is experiencing pain. These actions or reactions can be verbal or nonverbal, and involuntary or deliberate. | ♦ (51◊) |
♦ (8) |
||
| Physical Activity | Self-reported capability rather than actual performance of physical activities. This includes the functioning of one’s upper extremities (dexterity), lower extremities (walking or mobility), and central regions (neck, back), as well as instrumental activities of daily living. | S (7) |
♦ (10) |
♦ (4, 8) |
|
| Physical Function – Upper Extremity | Activities that require use of the upper extremity including shoulder, arm, and hand activities. | ♦ (24◊) |
♦ (8) |
||
| Physical Stress Experiences | The physically experienced sensations associated with responses to internal or external challenges including arousal, agitation, pain, and gastrointestinal distress. | ♦ (26) |
♦ (4, 8) |
||
| Sleep Disturbance | Sleep quality, sleep onset (difficulties falling asleep), sleep continuity (difficulties staying asleep). | ♦ (4^) |
♦ (15) |
♦ (4, 8) |
|
| Sleep Problems | Young children's sleep disturbance, which reflects sleep quality pertaining to delayed sleep, sleep onset, and sleep continuity, and sleep-related impairment, which reflects the impact of poor sleep on daytime functioning, routines, and mood. | ♦ (16) |
♦ (4, 8) |
||
| Sleep-Related Impairment | Perceptions of sleepiness during usual awake hours and reported impairments during the day associated with sleep problems or daytime sleepiness. | ♦ (4^) |
♦ (13) |
♦ (4, 8) |
|
| Strength Impact | A child's capacity to perform functional activities of daily living that require significant amount of muscle force generation. | ♦ (12) |
♦ (4, 8) |
||
| Early Childhood Parent-Report and Parent Proxy Domains | Definition | Early Childhood Parent-Report for Pediatric Patients (ages 1-5) |
Parent Proxy for Pediatric Patients (ages 5-17) |
||
| CAT (# items in bank) |
Short Form or Scale (# items) |
CAT (# items in bank) |
Short Form or Scale (# items) |
||
| Social Health | |||||
| Family Relationships | The subjective (affective, emotional, cognitive) experience of being involved with one’s family, feeling like an important person in the family, of feeling accepted and cared for, and feeling that family members, especially parents, can be trusted and depended on for help and understanding. | ♦ (4#, 5#) |
♦ (47) |
♦ (4, 8) |
|
| Social Relationships | Young children's family relationships—positive interactions, experiences, and connectedness with the primary caregiver and broader family unit reflecting warmth and affection, trust, dependability, and support—and peer relationships—positive peer interactions, sociability (getting along well with others), and empathic behaviors. | ♦ (31) |
♦ (6) |
||
♦ Measure is derived from a calibrated item bank.
S This measure is a scale (items are not a subset from an item bank and the measure produces a score).
* The 9-item Parent Proxy Global Health measure is named "7+2". It produces scores for Global Health, Fatigue, and Pain Interference.
◊ A Screen-to-CAT measure also exists for this Item Bank.
^ The Early Childhood Sleep Disturbance and Sleep-Related Impairment short forms are comprised of items from the Sleep Problems item bank.
# The Early Childhood Parent-Report Family Relationships items come from the Early Childhood Social Relationships item bank.
NRS Numeric Rating Scale.
Table last updated on 11/03/2025
Available Parent Proxy (Ages 5-17) Profiles for PROMIS
| Profile Measure | Definition | Parent Proxy for Pediatric Patients (ages 5-17) |
|
|
CATs or Short Forms |
Total Measure Length |
||
| Profiles | |||
| PROMIS Parent Proxy-25 Profile | A collection of 4-item short forms assessing anxiety, depressive symptoms, fatigue, pain interference, physical function-mobility, and peer relationships, as well as a single pain intensity item. | Short Forms | 25 |
| PROMIS Parent Proxy-36 Profile | A collection of 5- and 6-item short forms assessing anxiety, depressive symptoms, fatigue, pain interference, physical function-mobility, and peer relationships, as well as a single pain intensity item. | Short Forms | 36 |
| PROMIS Parent Proxy-48 Profile | A collection of 7- and 8-item short forms assessing anxiety, depressive symptoms, fatigue, pain interference, physical function-mobility, and peer relationships, as well as a single pain intensity item. | Short Forms | 48 |
Table last updated on 8/1/2025
PROMIS Early Childhood Parent-Report (Ages 1-5) and Parent Proxy (Ages 5-17) Totals
| Type |
Early Childhood Parent-Report Total |
Parent Proxy Total |
| Items | 225 | 594 |
| Bank/Scale/Pools | 12 | 29 |
| Short Forms | 16 | 39 |
| Domains | 12 | 25 |
| Profiles | 0 | 3 |
Table last updated on 10/20/2023
Early Childhood Parent-Report versus Parent Proxy Measures
- Early Childhood Parent-Report measures are completed by parents for children ages 1 to 5 years old.
- Parent Proxy measures are completed by parents for children ages 5 to 17 years old.
- The Early Childhood Parent-Report measures utilized the Parent Proxy item banks as a starting point for measure development, but include unique items and are scored on a separate metric. Scores from Early Childhood Parent-Report measures cannot be compared to scores from Parent Proxy measures.
Translations
There are many available translations.
Types of Measures
PROMIS measures include item banks, short forms, and computer adaptive tests (CATs).
- Item banks are collections of carefully selected and tested items all measuring the same construct. Any subset of items can be administered and produce a score on the same metric. In some administration platforms, an item bank defaults to being administered as a computer adaptive test. Item banks are not intended to be administered in their entirety.
- Short forms are subsets of items selected from a larger collection of items (e.g., from an item bank). A short form usually generates a single score for a construct. Sometimes short forms are called fixed length forms or fixed forms.
- Scales are complete collections of scored items to be administered in their entirety.
- Profiles measure multiple constructs through a fixed collection of short forms or CATs.
- Pools are collections of related items not intended to produce a summary score, but to be used as single items.
Retired Measures
Don’t see a measure that you have used in the past? To request access to a retired measure, contact us.
Last updated on 11/03/2025