PROMIS® Primary Citations
The following tables provide primary citations for PROMIS measures. This includes:
- Cross-cutting citations that summarize aspects of measure development and testing.
- Citations for Adult domains.
- Citations for Pediatric domains.
- Citations for Parent Proxy domains.
- Citations for Early Childhood domains.
Note that a citation is typically about a PROMIS item bank and therefore applies to computer adaptive tests and short forms. For example, Lai et al (2011) can be used to for the PROMIS v1.0 Fatigue computer adaptive test, screen-to-CAT, and for the 4-, 6-, and 8-item short forms.
| General PROMIS Citations | ||
| Respondent | Topic | Citation(s) |
| Adult | Development and initial testing | Cella, D., Riley, W., Stone, A. A., Rothrock, N., Reeve, B. B., Yount, S., Amtmann, D., D., B., Choi, S., Cook, K. F., et al. (2010). The Patient Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. Journal of Clinical Epidemiology 63, 1179-1194. |
| Adult | Qualitative methods | DeWalt, D., Rothrock, N., Yount, S., Stone, A. A., & on behalf of the PROMIS cooperative group. (2007). Evaluation of item candidates: the PROMIS qualitative item review. Medical Care, 45(5), S12-21. |
| Adult | Psychometric methods |
Reeve, B., Hays, R. D., Bjorner, J., Cook, K., Crane, P. K., Teresi, J. A., Thissen, D., Revicki, D. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the Patient-Reported Outcome Measurement Information System (PROMIS). Medical Care, 45(5), S22-31. Hansen, M., Cai, L., Stucky, B.D., Tucker, J.S., Shadel, W.G., & Edelen, M.O. (2014). Methodology for Developing and Evaluating the PROMIS® Smoking Item Banks. Nicotine and Tobacco Research, 16(Suppl 3), S175-189. http://dx.doi.org/10.1093/ntr/ntt123 See also Psychometrika (2021) special section “Advancing methods to assess patient-reported outcomes: lessons learned from the Patient-Reported Outcomes Measurement Information System (PROMIS) initiative, 86. |
| Adult | Linking measures | Schalet, B.D., Lim, S., Cella, D. et al. Linking Scores with Patientreported health outcome instruments: A validation study and comparison of three linking methods. Psychometrika 86, 717-746 (2021). https://doi.org/10.1007/s11336-021-09776-z |
| Adult | Validation across clinical samples |
Schalet BD, Pilkonis PA, Yu L, Dodds N, Johnston KL, Yount S, Riley W, Cella D. (2016). Clinical validity of PROMIS Depression, Anxiety, and Anger across diverse clinical samples. Journal of Clinical Epidemiology 73, 119-127. Cook, K.F., Jensen, S.E., Schalet, B.D., Beaumont, J.L., Amtmann, D., Czajkowski, S., et al. (2016). PROMIS® Measures of Pain, Fatigue, Negative Affect, Physical Function and Social Function Demonstrate Clinical Validity across a Range of Chronic Conditions. Journal of Clinical Epidemiology, 73, 89-102. Schalet, B.D., Hays, R.D., Jensen, S.E., Beaumont, J.L., Fries, J.F., & Cella, D. (2016). Validity of PROMIS® Physical Function 2 Measures in Diverse Clinical Samples. Journal of Clinical Epidemiology, 73, 112-118. Askew, R.L., Cook, K.F., Revicki, D.A., Cella, D., & Amtmann, D. (2016). Clinical Validity of PROMIS® Pain Interference and Pain Behavior in Diverse Clinical Populations. Journal of Clinical Epidemiology, Volume 73, May 2016, Pages 103-111. Cella, D., Lai, J.-S., Jensen, S.E., Christodoulou, C., Junghaenel, D.U., Reeve, B.B., & Stone, A.A. (2016). PROMIS Fatigue Item Bank Had Clinical Validity across Diverse Chronic Conditions. Journal of Clinical Epidemiology, 73, 128–134. Hahn, E.A., Beaumont, J.L., Pilkonis, P.A., Garcia, S.F., Magasi, S., DeWalt, D.A., & Cella, D. (2016). The PROMIS® Satisfaction with Social Participation Measures Demonstrate Responsiveness in Diverse Clinical Populations. Journal of Clinical Epidemiology, 73, 135-141. |
| Adult | Measurement equivalence of short forms in diverse sociodemographic groups | Reeve, B.B. & Teresi, J.A. (2016). Overview to the two-part series: Measurement equivalence of the Patient Reported Outcomes Measurement Information System (PROMIS) short forms. Psychological Test and Assessment Modeling, 58, 31-35. |
| Pediatric | Validation across clinical samples |
DeWalt, D., Gross, H., Gipson, D., Selewski, D., DeWitt, E., Dampier, C., et al. (2015). PROMIS® Pediatric Self-Report Scales Distinguish Subgroups of Children within and across Six Common Pediatric Chronic Health Conditions. Quality of Life Research, 1-14. Forrest, C.B., Schuchard, J., Bruno, C. et al (2022). Self-reported health outcomes of children and youth with 10 chronic diseases. Journal of Pediatrics, 246: 207-212. Use PubMed to find additional validation studies focused on specific PROMIS domains or clinical diagnoses. |
| Pediatric | Qualitative methods | Irwin, D.E., Varni, J.W., Yeatts, K., & DeWalt, D.A. (2009). Cognitive Interviewing Methodology in the Development of a Pediatric Item Bank: A Patient Reported Outcomes Measurement Information System (PROMIS) Study. Health and Quality of Life Outcomes, 7(3). |
| Early Childhood Parent-Report | Development rationale | Park, C.H., Blaisdell, C.J., & Gillman, M.W. (2022). The NIH ECHO Program: An Impetus for the Development of Early Childhood PROMIS Tools. Journal of Pediatric Psychology, 47(5), 497-499. |
| Early Childhood Parent-Report | Qualitative methods | Cella, D., Blackwell, C.K., & Wakschlag, L.S. (2022). Bringing PROMIS to Early Childhood: Introduction and Qualitative Methods for the Development of Early Childhood Parent Report Instruments. Journal of Pediatric Psychology, 47(5):500-9. |
| Early Childhood Parent-Report | Psychometric methods | Lai, J.S., Kallen, M.A., Blackwell, C.K., Wakschlag, L.S., & Cella, D. (2022). Psychometric Considerations in Developing PROMIS® 3 Measures for Early Childhood. Journal of Pediatric Psychology, 47(5):510-22. |
| All | Computer Adaptive Testing (CAT) | Cella D, Gershon R, Lai JS, Choi S. The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment. Quality of Life Research. 2007;16(Suppl 1):133-141. |
Adult
| Adult PROMIS Physical Health Measures | ||
| Respondent | Measures | Citation(s) |
| Adult | Dyspnea v1.0 | Choi, S.W., Victorson, D.E., Yount, S., Anton, S., Cella, D. (2011). Development of a Conceptual Framework and Calibrated Item Banks to Measure Patient Reported Dyspnea Severity and Related Functional Limitations. Value in Health 14, 291-306. |
| Adult | Fatigue v1.0 | Lai, J.S., Cella, D., Choi, S.W., Junghaenel, D.U., Christodoulou, C., Gershon, R., & Stone, A. (2011). How Item Banks and Their Application Can Influence Measurement Practice in Rehabilitation Medicine: A PROMIS Fatigue Item Bank Example. Archives of Physical Medicine and Rehabilitation, 92(10 Supplement), S20-S27. |
| Adult | Fatigue v1.0 Daily |
Schneider S, Choi SW, Junghaenel DU, Schwartz JE, Stone AA. Psychometric characteristics of daily diaries for the PatientReported Outcomes Measurement Information System (PROMIS): a preliminary investigation. Quality of Life Research 2013; 22. |
| Adult | Fatigue v1.0 – Multiple Sclerosis | Kamudoni, P., Johns, J., Cook, K. F., Salem, R., Salek, S., Raab, J., Middleton, R., Henke, C., Repovic, P., Alschuler, K., von Geldern, G., Wundes, A., & Amtmann, D. (2021). Standardizing fatigue measurement in multiple sclerosis: the validity, responsiveness and score interpretation of the PROMIS SF v1.0 - Fatigue (MS) 8a. Multiple Sclerosis and Related Disorders, 54, 103117. |
| Adult | Gastrointestinal Symptoms v1.0 |
Spiegel, B.M., Hays, R.D., Bolus, R., Melmed, G.Y., Chang, L., Whitman, C., et al. (2014). Development of the NIH PatientReported Outcomes Measurement Information System (PROMIS) Gastrointestinal Symptom Scales. American Journal of Gastroenterology, 109(11), 1804-1814. Khanna, D., Hays, R.D., Shreiner, A.B., Melmed, G.Y., Chang, L., Khanna, P.P., et al. (2017). Responsiveness to Change and Minimally Important Differences of the Patient-Reported Outcomes Measurement Information System Gastrointestinal Symptoms Scales. Digestive Diseases and Sciences, 1-7. |
| Adult | Itch v1.0 |
Silverberg, J. I., Lai, J.-S., Kantor, R. W., Dalal, P., Hickey, C., Shaunfield, S., . . . Cella, D. (2019). Development, validation and interpretation of the PROMIS Itch Questionnaire: a patient-reported outcome measure for the quality of life impact of itch. Journal of Investigative Dermatology. Silverberg, J. I., Lai, J.-S., Patel, K. R., Singam, V., Vakharia, P. P., Chopra, R., . . . Cella, D. (2020). Measurement properties of the Patient-Reported Outcomes Information System (PROMIS®) Itch Questionnaire: itch severity assessments in adults with atopic dermatitis. British Journal of Dermatology. |
| Adult | Mobility v1.0 – v2.0 |
Hays, R.D., Spritzer, K.L., Amtmann, D., Lai, J.-S., DeWitt, E.M., Rothrock, N., et al. (2013). Upper Extremity and Mobility 5 Subdomains from the Patient-Reported Outcomes Measurement Information System (PROMIS®) Adult Physical Functioning Item Bank. Archives of Physical Medicine and Rehabilitation, 94(11), 2291-2296. |
| Adult | Pain Behavior v1.0 – v2.0 | Revicki, D. A., Chen, W-H., Harnam, N., Cook, K., Amtmann, D., Callahan, L. F., Jensen, M. P., & Keefe, F. J. (2009). Development and psychometric analysis of the PROMIS pain behavior item bank. Pain, 146(1-2), 158-69. |
| Adult | Pain Behavior v2.0 | Cook KF, Keefe F, Jensen MP, Roddey TS, Callahan LF, et al. Development and validation of a new self-report measure of pain behaviors. Pain. 2013 Dec;154(12):2867-76. |
| Adult | Pain Interference v1.0 – v1.1 | Amtmann, D. A., Cook, K. F., Jensen, M. P., Chen, W-H., Choi, S. W., Revicki, D., Cella, D., Rothrock, N., Keefe, F., Callahan, L., Lai, J-S. (2010). Development of a PROMIS item bank to measure pain interference. Pain, 150(1), 173-82. |
| Adult | Pain Intensity Scale (3 items) v1.0 | No reference available |
| Adult | Pain Intensity - Numeric Rating Scale v1.0 | No reference available |
| Adult | Pain Quality v2.0 | (Neuropathic pain) Askew, R.L., Cook, K.F., Keefe, F.J., Nowinski, C.J., Cella, D., Revicki, D.A., et al. (2016). A PROMIS Measure of Neuropathic Pain Quality. Value in Health, 19(5), 623-630. |
| Adult | Physical Function v1.0 – v1.2 | Rose, M., Bjorner, J. B., Becker, J., Fries, J. F., & Ware, J. E. (2008). Evaluation of a preliminary physical function item bank supports the expected advantages of the PatientReported Outcomes Measurement Information System (PROMIS). Journal of Clinical Epidemiology, 61, 17-33. |
| Adult | Physical Function v2.0 | Rose, M., Bjorner, J.B., Gandek, B., Bruce, B., Fries, J.F., & Ware Jr, J.E. (2014). The PROMIS Physical Function Item Bank Was Calibrated to a Standardized Metric and Shown to Improve Measurement Efficiency. Journal of Clinical Epidemiology, 67(5), 516-526. |
| Adult | Sexual Function and Satisfaction v1.0 |
Flynn, K. E., Jeffery, D. D., Keefe, F. J., Porter, L. S., Shelby, R. A., Fawzy, M. R., Gosselin, T. K., Reeve, B. B., & Weinfurt, K. P. (2011). Sexual functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS). PsychoOncology, 20(4), 378-86. Flynn, K.E., Reeve, B.B., Lin, L., Cyranowski, J.M., Bruner, D.W., & Weinfurt, K.P. (2013). Construct Validity of the PROMIS(R) Sexual Function and Satisfaction Measures in Patients with Cancer. Health and Quality of Life Outcomes, 11, 40. Flynn, K.E., Lin, L., Cyranowski, J.M., Reeve, B.B., Reese, et al. (2013). Development of the NIH PROMIS Sexual Function and Satisfaction Measures in Patients with Cancer. Journal of Sexual Medicine, 10 Suppl 1, 43-52. |
| Adult | Sexual Function and Satisfaction v2.0 | Weinfurt, K.P., Lin, L., Bruner, D.W., Cyranowski, J.M., Dombeck, C.B., Hahn, E.A., et al. (2015). Development and Initial Validation of the PROMIS® Sexual Function and Satisfaction Measures Version 2.0. The Journal of Sexual Medicine, Sep;12(9):1961-74. |
| Adult | Sleep v1.0 |
Buysse, D. J., Moul, D. E., Germain, A., Yu, L., Stover, A. M., Dodds, N. E., Johnston, K. L., Shablesky-Cade, M. A., & Pilkonis, P. A. (2010). Development and validation of patientreported outcome measures for sleep disturbance and sleeprelated impairments. Sleep, 33(6), 781-92. Yu, L., Buysse, D.J., Germain, A., Moul, D.E., Stover A., Dodds N.E., Johnston, K.L., Pilkonis, P.A. (2011). Development of short forms for PROMIS sleep disturbance and Sleep-Related Impairment item banks. Behavioral Sleep Medicine, 10(1), 6-24. |
| Adult | Upper Extremity v1.0 | Hays, R.D., Spritzer, K.L., Amtmann, D., Lai, J.-S., DeWitt, E.M., Rothrock, N., et al. (2013). Upper Extremity and Mobility Subdomains from the Patient-Reported Outcomes Measurement Information System (PROMIS®) Adult Physical Functioning Item Bank. Archives of Physical Medicine and Rehabilitation, 94(11), 2291-2296. |
| Adult | Upper Extremity v2.0 | Kaat AJ, Buckenmaier C, Cook KF, Rothrock NE, Schalet BD, Gershon RC, Vrahas MS. The expansion and validation of a new upper extremity item bank for the Patient-Reported Outcomes Measurement Information System® (PROMIS). Journal of Patient-Reported Outcomes (2019) 3:69. https://doi.org/10.1186/s41687-019-0158-6. |
| Adult PROMIS Mental Health Measures | ||
| Respondent | Measures | Citation(s) |
| Adult | Alcohol Use v1.0 |
Pilkonis, P.A., Yu, L., Colditz, J., Dodds, N., Johnston, K.L., Maihoefer, C., et al. (2013). Item Banks for Alcohol Use from the Patient-Reported Outcomes Measurement Information System (PROMIS): Use, Consequences, and Expectancies. Drug and Alcohol Dependence, 130(1-3), 167-177. Pilkonis, P.A., Yu, L., Dodds, N.E., Johnston, K.L., Lawrence, S., Hilton, T.F. et al. (2015). Item Banks for Substance Use from the Patient-Reported Outcomes Measurement Information System (PROMIS®): Severity of Use and Positive Appeal of Use. Drug and Alcohol Dependence, 2015 Nov 1;156: 184-192. Pilkonis, P.A., Yu, L., Dodds, N.E., Johnston, K.L., Lawrence, S.M., & Daley, D.C. (2016). Validation of the Alcohol Use Item Banks from the Patient-Reported Outcomes Measurement Information System (PROMIS®). Drug and Alcohol Dependence, 161, 316–322. |
| Adult | Anger v1.0 – v1.1 |
Pilkonis, P.A., Choi, S.W., Reise, S.P., Stover, A.M., Riley, W.T., & Cella, D. (2011). Item Banks for Measuring Emotional Distress from the Patient-Reported Outcomes Measurement 7 Information System (PROMIS): Depression, Anxiety, and Anger. Assessment, 18(3), 263-283. Pilkonis, P.A., Yu, L., Dodds, N.E., Johnston, K.L., Maihoefer, C.C., & Lawrence, S.M. (2014). Validation of the Depression Item Bank from the Patient-Reported Outcomes Measurement Information System (PROMIS) in a Three-Month Observational Study. Journal of Psychiatric Research, 56, 112-119. |
| Adult | Anxiety v1.0 |
Pilkonis, P.A., Choi, S.W., Reise, S.P., Stover, A.M., Riley, W.T., & Cella, D. (2011). Item Banks for Measuring Emotional Distress from the Patient-Reported Outcomes Measurement Information System (PROMIS): Depression, Anxiety, and Anger. Assessment, 18(3), 263-283. Pilkonis, P.A., Yu, L., Dodds, N.E., Johnston, K.L., Maihoefer, C.C., & Lawrence, S.M. (2014). Validation of the Depression Item Bank from the Patient-Reported Outcomes Measurement Information System (PROMIS) in a Three-Month Observational Study. Journal of Psychiatric Research, 56, 112-119. |
| Adult | Cognitive Function v1.0 | (No reference available for v1.0, but v1.0 was mentioned in v2.0 paper; see Lai et al., 2014 below) |
| Adult | Cognitive Function v2.0 | Lai, J.-S., Wagner, L.I., Jacobsen, P.B., & Cella, D. (2014). SelfReported Cognitive Concerns and Abilities: Two Sides of One Coin? Psycho-Oncology, 23(10), 1133-1141 |
| Adult | Depression v1.0 |
Pilkonis, P.A., Choi, S.W., Reise, S.P., Stover, A.M., Riley, W.T., & Cella, D. (2011). Item Banks for Measuring Emotional Distress from the Patient-Reported Outcomes Measurement Information System (PROMIS): Depression, Anxiety, and Anger. Assessment, 18(3), 263-283. Pilkonis, P.A., Yu, L., Dodds, N.E., Johnston, K.L., Maihoefer, C.C., & Lawrence, S.M. (2014). Validation of the Depression Item Bank from the Patient-Reported Outcomes Measurement Information System (PROMIS) in a Three-Month Observational Study. Journal of Psychiatric Research, 56, 112-119. |
| Adult | General Life Satisfaction v1.0 |
Salsman, J., Lai, J.-S., Hendrie, H., Butt, Z., Zill, N., Pilkonis, P.A., et al. (2014). Assessing Psychological Well-Being: Self-Report Instruments for the NIH Toolbox. Quality of Life Research, 23(1), 205-215. |
| Adult | General Self-Efficacy v1.0 | Kupst, M.J., Butt, Z., Stoney, C.M., Griffith, J.W., Salsman, J.M., Folkman, S., & Cella, D. (2015). Assessment of Stress and SelfEfficacy for the NIH Toolbox for Neurological and Behavioral Function. Anxiety, Stress and Coping, 28(5), 531-544. |
| Adult | Healthcare Access Satisfaction v1.0 | Carlozzi NE, Kallen MA, Troost JP, Bragg A, Martin-Howard J, De La Cruz B, Miner JA, Moldovan I, Jack BW, Mitchell S. Development and calibration data for the Healthcare Access Item Bank: a new computer adaptive test for persons with 8 type 2 diabetes mellitus. Qual Life Res. 2023 Mar;32(3):781796. doi: 10.1007/s11136-022-03278-w. Epub 2022 Oct 31. PMID: 36315318; PMCID: PMC10472318. |
| Adult | Illness Burden v1.0 | Mitchell S, Kallen MA, Troost JP, Bragg A, Martin-Howard J, Moldovan I, Miner JA, Jack BW, Carlozzi NE. Development and calibration data for the Illness Burden item bank: a new computer adaptive test for persons with type 2 diabetes mellitus. Qual Life Res. 2023 Mar;32(3):797-811. doi: 10.1007/s11136-022-03282-0. Epub 2022 Oct 25. PMID: 36282447; PMCID: PMC10472317. |
| Adult | Meaning and Purpose v1.0 |
Salsman, J., Lai, J.-S., Hendrie, H., Butt, Z., Zill, N., Pilkonis, P.A., et al. (2014). Assessing Psychological Well-Being: Self-Report Instruments for the NIH Toolbox. Quality of Life Research, 23(1), 205-215. Salsman, J. M., Schalet, B. D., Park, C. L., George, L., Steger, M. F., Hahn, E. A., Snyder, M. A., & Cella, D. (2020). Assessing meaning & purpose in life: development and validation of an item bank and short forms for the NIH PROMIS®. Quality of life research: an international journal of quality of life aspects of treatment, care and rehabilitation, 29(8), 2299–2310. https://doi.org/10.1007/s11136-020-02489-3 |
| Adult | Positive Affect v1.0 | Salsman, J., Lai, J.-S., Hendrie, H., Butt, Z., Zill, N., Pilkonis, P.A., et al. (2014). Assessing Psychological Well-Being: Self-Report Instruments for the NIH Toolbox. Quality of Life Research, 23(1), 205-215. |
| Adult | Positive Attitudes Toward Complementary and Integrative Medicine v1.0 | Greco, C. M., Yu, L., Johnston, K. L., Dodds, N. E., Morone, N. E., Glick, R. M., ... Pilkonis, P. A. (2016). Measuring nonspecific factors in treatment: Item banks that assess the healthcare experience and attitudes from the patient’s perspective. Quality of Life Research, 25(7), 1625-34. |
| Adult | Positive Outlook v1.0 | Greco, C. M., Yu, L., Johnston, K. L., Dodds, N. E., Morone, N. E., Glick, R. M., ... Pilkonis, P. A. (2016). Measuring nonspecific factors in treatment: Item banks that assess the healthcare experience and attitudes from the patient’s perspective. Quality of Life Research, 25(7), 1625-34. |
| Adult | Positive Treatment Expectations v1.0 | Greco, C. M., Yu, L., Johnston, K. L., Dodds, N. E., Morone, N. E., Glick, R. M., ... Pilkonis, P. A. (2016). Measuring nonspecific factors in treatment: Item banks that assess the healthcare experience and attitudes from the patient’s perspective. Quality of Life Research, 25(7), 1625-34. |
| Adult | Psychosocial Illness Impact (Positive and Negative) v1.0 | Lai, J.S., Garcia, S.F., Salsman, J.M., Rosenbloom, S., & Cella, D. (2012). The Psychosocial Impact of Cancer: Evidence in Support of Independent General Positive and Negative Components. Quality of Life Research, 21(2), 195-207. |
| Adult | Self-Efficacy for Management of Chronic Conditions v1.0 | Gruber-Baldini, A.L., Velozo, C., Romero, S., & Shulman, L.M. (2017). Validation of the PROMIS® Measures of Self-Efficacy 9 for Managing Chronic Conditions. Quality of Life Research, 1-10. |
| Adult | Smoking v1.0 |
Edelen, M.O., Tucker, J.S., Shadel, W.G., Stucky, B.D., & Cai, L. (2012). Toward a More Systematic Assessment of Smoking: Development of a Smoking Module for PROMIS®. Addictive Behaviors, 37(11), 1278-1284. |
| Adult | Spirituality v1.0 | Greco, C. M., Yu, L., Johnston, K. L., Dodds, N. E., Morone, N. E., Glick, R. M., ... Pilkonis, P. A. (2016). Measuring nonspecific factors in treatment: Item banks that assess the healthcare experience and attitudes from the patient’s perspective. Quality of Life Research, 25(7), 1625-34. |
| Adult | Substance Use v1.0 | Johnston, K., Lawrence, S., Dodds, N., Yu, L., Daley, D., & Pilkonis, P. (2015). Evaluating PROMIS® Instruments and Methods for Patient-Centered Outcomes Research: Patient and Provider Voices in a Substance Use Treatment Setting. Quality of Life Research, 2016 Mar;25(3):615-24 |
| Adult PROMIS Social Health Measures | ||
| Respondent | Measures | Citation(s) |
| Adult | General, Development Work |
Castel, L.D., Williams, K.A., Bosworth, H.B., Eisen, S.V., Hahn, E.A., Irwin, D.E., et al. (2008). Content Validity in the PROMIS Social-Health Domain: A Qualitative Analysis of Focus-Group Data. Quality of Life Research, 17(5), 737-749. Hahn, E. A., Cella, D., Bode, R. K., Hanrahan, R. T. (2010). Measuring social well-being in people with chronic illness. Social Indicators Research, 96, 381-401. Bode, R.K., Hahn, E.A., DeVellis, R., Cella, D., on behalf of the Patient-Reported Outcomes Measurement Information System Social Domain Working Group. (2010). Measuring participation: the Patient-Reported Outcomes Measurement Information System experience. Archives of Physical Medicine and Rehabilitation, 91(9 Suppl 1), S60-S65. |
| Adult | Ability to Participate in Social Roles and Activities v2.0 |
Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., et al. (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychology, 33(5), 490–499. |
| Adult | Companionship v2.0 |
Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., et al. (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychology, 33(5), 490–499. |
| Adult | Emotional Support v2.0 | Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., et al. (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychology, 33(5), 490–499. |
| Adult | Informational Support v2.0 | Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., et al. (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychology, 33(5), 490–499. |
| Adult | Instrumental Support v2.0 |
Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., et al. (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychology, 33(5), 490–499. |
| Adult | Satisfaction with Participation in Discretionary Activities v1.0 |
Hahn, E. A., DeVellis, R. F., Bode, R. K., Garcia, S. F., Castel, L. D., Eisen, S. V., Bosworth, H. B., Heinemann, A. W., et al. (2010). Measuring social health in the Patient-Reported Outcomes Measurement Information System (PROMIS): Item bank development and testing. Quality of Life Research, 19, 1035-1044. |
| Adult | Satisfaction with Participation in Social Roles v1.0 | Hahn, E. A., DeVellis, R. F., Bode, R. K., Garcia, S. F., Castel, L. D., Eisen, S. V., Bosworth, H. B., Heinemann, A. W., et al. (2010). Measuring social health in the Patient-Reported Outcomes Measurement Information System (PROMIS): Item bank development and testing. Quality of Life Research, 19, 1035-1044. |
| Adult | Satisfaction with Social Roles and Activities v2.0 | Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., et al. (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychology, 33(5), 490–499. |
| Adult | Social Isolation v2.0 | Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., et al. (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychology, 33(5), 490–499. |
| Adult PROMIS Global Health Measures | ||
| Respondent | Measures | Citation(s) |
| Adult | Global Health (10 items) v1.0 – v1.2 | Hays, R. D., Bjorner, J., Revicki, R. A., Spritzer, K. L., & Cella, D. (2009). Development of physical and mental health summary scores from the Patient Reported Outcomes Measurement Information System (PROMIS) global items. Quality of Life Research, 18(7), 873-80. |
| Adult | Global Health (2 items) v1.2 |
Hays RD, Schalet BD, Spritzer KL, Cella D. Two-item PROMIS® global physical and mental health scales. Journal of PatientReported Outcomes. 2017;1(1):2. |
| Adult PROMIS Profiles | ||
| Respondent | Measures | Citation(s) |
| Adult | v1.0 – v2.1 |
Hays, R.D., Spritzer, K.L., Schalet, B.D., & Cella, D. PROMIS®-29 v2.0 Profile Physical and Mental Health Summary Scores. Qual Life Res. 2018 Jul;27(7):1885-1891. |
| Adult | Heart Failure v1.0 | Ahmad, F.S., Jackson, K.L., Yount, S.E., Rothrock, N.E., Kallen, M.A., Lacson, L., Bilimoria, K.Y., Kho, A.N., Mutharasan, R.K., McCullough, P.A., Bruckel, J., Fedson, S., Kimmel, S.E., Eton, D.T., Grady, K.L., Yancy, C.W., & Cella, D. (2022). The Development and Initial Validation of the PROMIS®+HF-27 and PROMIS+HF-10 Profiles. ESC Heart Failure, 9(5), 3380-3392. |
| Adult | Sexual Function and Satisfaction v1.0 |
Flynn, K. E., Jeffery, D. D., Keefe, F. J., Porter, L. S., Shelby, R. A., Fawzy, M. R., Gosselin, T. K., Reeve, B. B., & Weinfurt, K. P. (2011). Sexual functioning along the cancer continuum: focus 11 group results from the Patient-Reported Outcomes Measurement Information System (PROMIS). PsychoOncology, 20(4), 378-86. Flynn, K.E., Reeve, B.B., Lin, L., Cyranowski, J.M., Bruner, D.W., & Weinfurt, K.P. (2013). Construct Validity of the PROMIS(R) Sexual Function and Satisfaction Measures in Patients with Cancer. Health and Quality of Life Outcomes, 11, 40. Flynn, K.E., Lin, L., Cyranowski, J.M., Reeve, B.B., Reese, et al. (2013). Development of the NIH PROMIS Sexual Function and Satisfaction Measures in Patients with Cancer. Journal of Sexual Medicine, 10 Suppl 1, 43-52. |
| Adult | Sexual Function and Satisfaction v2.0 |
Weinfurt, K.P., Lin, L., Bruner, D.W., Cyranowski, J.M., Dombeck, C.B., Hahn, E.A., et al. (2015). Development and Initial Validation of the PROMIS® Sexual Function and Satisfaction Measures Version 2.0. The Journal of Sexual Medicine, Sep;12(9):1961-74. |
| Adult PROMIS Other | ||
| Respondent | Measures | Citation(s) |
| Adult | Osteoarthritis—Knee v1.0 – v2.0 |
No reference available |
Pediatric
| Pediatric PROMIS Physical Health Measures | ||
| Respondent | Measures | Citation(s) |
| Pediatric | Asthma Impact v1.0 – v2.0 | Yeatts, K. B., Stucky, B. D., Thissen, D., Irwin, D., Varni, J. W., DeWitt, E. M., Lai, J-S., & DeWalt, D. A. (2010). Construction of the Pediatric Asthma Impact Scale (PAIS) for the PatientReported Outcomes Measurement Information system (PROMIS). Journal of Asthma, 47(3), 295-302. |
| Pediatric | Fatigue v1.0 | Lai, J.-S., Stucky, B., Thissen, D., Varni, J., DeWitt, E., Irwin, D., et al. (2013). Development and Psychometric Properties of the PROMIS® Pediatric Fatigue Item Banks. Quality of Life Research, 22(9), 2417-2427. |
| Pediatric | Fatigue v2.0 |
Quinn H, Thissen D, Liu Y, Magnus B, Lai JS, Amtmann D, Varni JW, Gross HE, DeWalt DA. (2014) Using item response theory to enrich and expand the PROMIS® pediatric self-report banks. Health and Quality of Life Outcomes. 2014 Oct 25;12: 160. |
| Pediatric | Fatigue GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric | Itch (PIQ-C) v1.0 |
Paller, A. S., Lai, J. S., Jackson, K., Rangel, S. M., Nowinski, C., Silverberg, J. I., Ustsinovich, V., & Cella, D. (2022). Generation and Validation of the Patient-Reported Outcome Measurement Information System Itch Questionnaire-Child (PIQ-C) to Measure the Impact of Itch on Life Quality. Journal of Investigative Dermatology, 142(5), 1309–1317.e1. |
| Pediatric | Mobility v1.0 |
DeWitt, E. M., Stucky, B. D., Thissen, D., Irwin, D. E., Langer, M., Varni, J. W., Lai, J-S, Yeatts, K. B., & DeWalt, D. A. (2011). Construction of the eight item PROMIS Pediatric Physical Function Scales: Built using item response theory. Journal of Clinical Epidemiology, 64(7), 794-804. |
| Pediatric | Mobility v2.0 |
Quinn H, Thissen D, Liu Y, Magnus B, Lai JS, Amtmann D, Varni JW, Gross HE, DeWalt DA. (2014) Using item response theory to enrich and expand the PROMIS® pediatric self-report banks. Health and Quality of Life Outcomes. 2014 Oct 25;12:160. |
| Pediatric | Mobility GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric | Pain Behavior v1.0 | Cunningham NR, Kashikar-Zuck S, Mara C, Goldschneider KR, Revicki DA, Dampier C, Sherry DD, Crosby L, Carle A, Cook KF, Morgan EM. Development and validation of the self-reported PROMIS pediatric pain behavior item bank and short form scale. Pain. 2017 Jul;158(7):1323-1331. |
| Pediatric | Pain Behavior GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric | Pain Interference v1.0 | Varni, J. W., Stucky, B. D., Thissen, D., DeWitt, E. M., Irwin, D., Lai, J-S., Yeatts, K., & DeWalt, D. A. (2010). PROMIS Pediatric Pain Interference Scale: An item response theory analysis of the Pediatric Pain Item Bank. Journal of Pain, 11(11), 1109-19. |
| Pediatric | Pain Interference v2.0 | Quinn H, Thissen D, Liu Y, Magnus B, Lai JS, Amtmann D, Varni JW, Gross HE, DeWalt DA. (2014) Using item response theory to enrich and expand the PROMIS® pediatric self-report banks. Health and Quality of Life Outcomes. 2014 Oct 25;12:160. |
| Pediatric | Pain Interference GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric | Pain Intensity – Numeric Rating Scale v1.0 | No reference available |
| Pediatric | Pain Quality – Affective, Sensory v2.0 | Jacobson CJ, Jr., Kashikar-Zuck S, Farrell J, Barnett K, Goldschneider K, Dampier C, Cunningham N, Crosby L, Morgan DeWitt E. Qualitative Evaluation of Pediatric Pain Behavior, Quality, and Intensity Item Candidates and the PROMIS Pain Domain Framework in Children With Chronic Pain. The Journal of Pain, Vol 16, No 12 (December), 2015: pp 1243-1255. |
| Pediatric | Pain Quality GenPop v3.0 |
Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric | Physical Activity v1.0 | Tucker, C. A., Bevans, K. B., Becker, B. D., Teneralli, R., & Forrest, C. B. (2020). Development of the PROMIS Pediatric Physical Activity Item Banks. Physical Therapy, 100(8), 1393–1410. https://doi.org/10.1093/ptj/pzaa074 |
| Pediatric | Sleep v1.0 |
Bevans, K.B., Meltzer, L.J., De La Motte, A., Kratchman, A., Viél, D., & Forrest, C.B. (2018). Qualitative Development and Content Validation of the PROMIS Pediatric Sleep Health Items. Behavioral Sleep Medicine, 1-15. Forrest, C.B., Meltzer, L.J., Marcus, C.L., de la Motte, A., Kratchman, A., Buysse, D.J., et al. (2018). Development and Validation of the PROMIS Pediatric Sleep Disturbance and Sleep-Related Impairment Item Banks. Sleep. Jun 1;41(6). |
| Pediatric | Strength Impact v1.0 |
Tucker, C.A., Bevans, K.B., Teneralli, R.E., Smith, A.W., Bowles, H.R., & Forrest, C.B. (2014). Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS: Conceptual Framework. Pediatric Physical Therapy. 26(4):376–384 Tucker, C.A., Bevans, K.B., Teneralli, R.E., Smith, A.W., Bowles, H.R., & Forrest, C.B. (2014). Self-Reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS: Item Development. Pediatric Physical Therapy, 26(4), 385-392. |
| Pediatric | Upper Extremity v1.0 | DeWitt, E. M., Stucky, B. D., Thissen, D., Irwin, D. E., Langer, M., Varni, J. W., Lai, J-S, Yeatts, K. B., & DeWalt, D. A. (2011). Construction of the eight item PROMIS Pediatric Physical Function Scales: Built using item response theory. Journal of Clinical Epidemiology, 64(7), 794-804. |
| Pediatric | Upper Extremity v2.0 | Quinn H, Thissen D, Liu Y, Magnus B, Lai JS, Amtmann D, Varni JW, Gross HE, DeWalt DA. (2014) Using item response theory to enrich and expand the PROMIS® pediatric self-report banks. Health and Quality of Life Outcomes. 2014 Oct 25;12:160. |
| Pediatric | Upper Extremity GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric PROMIS Mental Health Measures | ||
| Respondent | Measures | Citation(s) |
| Pediatric | Anger v1.0 |
Irwin, D., Stucky, B., Langer, M., Thissen, D., DeWitt, E., Lai, J.-S., et al. (2012). PROMIS Pediatric Anger Scale: An Item Response Theory Analysis. Quality of Life Research, 21(4), 697-706. |
| Pediatric | Anger v2.0 |
Quinn H, Thissen D, Liu Y, Magnus B, Lai JS, Amtmann D, Varni JW, Gross HE, DeWalt DA. (2014) Using item response theory to enrich and expand the PROMIS® pediatric self-report banks. Health and Quality of Life Outcomes. 2014 Oct 25; 12:160. |
| Pediatric | Anger GenPop v3.0 |
Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric | Anxiety v1.0 | Irwin, D. E., Stucky, B., Langer, M. M., Thissen, D., DeWitt, E. M., Lai, J-S., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2010). An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales. Quality of Life Research, 19(4), 595-607. |
| Pediatric | Anxiety v2.0 | Quinn H, Thissen D, Liu Y, Magnus B, Lai JS, Amtmann D, Varni JW, Gross HE, DeWalt DA. (2014) Using item response theory to enrich and expand the PROMIS® pediatric self-report banks. Health and Quality of Life Outcomes. 2014 Oct 25; 12:160. |
| Pediatric | Anxiety GenPop v3.0 |
Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric | Cognitive Function v1.0 |
Lai, J-S, Butt, Z., Zelko, F., Cella, D., Krull, K., Kieran, M., Goldman, S. (2011). Development of a Parent-reported Cognitive Function Item Bank Using Item Response Theory and Exploration of Its Clinical Utility in Computerized Adaptive Testing. Journal of Pediatric Psychology. 36(7):766-79. Lai, J-S., Zelko, F., Krull, K., Cella, D., Nowinski, C., Manley, P., Goldman, S. (2014). Parent-reported cognition of children 15 with cancer and its potential clinical usefulness. Quality of Life Research, 23, 1049-1058. |
| Pediatric | Depressive Symptoms v1.0 | Irwin, D. E., Stucky, B., Langer, M. M., Thissen, D., DeWitt, E. M., Lai, J-S., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2010). An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales. Quality of Life Research, 19(4), 595-607. |
| Adult | Depressive Symptoms v2.0 | Quinn H, Thissen D, Liu Y, Magnus B, Lai JS, Amtmann D, Varni JW, Gross HE, DeWalt DA. (2014) Using item response theory to enrich and expand the PROMIS® pediatric self-report banks. Health and Quality of Life Outcomes. 2014 Oct 25; 12:160. |
| Pediatric | Depressive Symptoms GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric | Life Satisfaction v1.0 |
Forrest, C.B., Devine, J., Bevans, K.B., Becker, B.D., Carle, A.C., Teneralli, R.E., et al. (2017). Development and Psychometric Evaluation of the PROMIS Pediatric Life Satisfaction Item Banks, Child-Report, and Parent-Proxy Editions. Quality of Life Research. 2018 Jan;27(1):217-234. |
| Pediatric | Meaning and Purpose v1.0 | Ravens-Sieberer U, Devine J, Bevans K, Riley AW, Moon J, Salsman JM, et al. (2014). Subjective well-being measures for children were developed within the PROMIS project: Presentation of first results. Journal of Clinical Epidemiology, 67(2), 207-218. |
| Pediatric | Physical and Psychological Stress Experiences v1.0 |
Bevans, K.B., Gardner, W., Pajer, K., Riley, A.W., & Forrest, C.B. (2013). Qualitative Development of the PROMIS® Pediatric Stress Response Item Banks. Journal of Pediatric Psychology, 38(2), 173-191. Bevans, K.B., Gardner, W., Pajer, K.A., Becker, B., Carle, A., Tucker, C.A., & Forrest, C.B. (2018). Psychometric Evaluation of the PROMIS® Pediatric Psychological and Physical Stress Experiences Measures. Journal of Pediatric Psychology. |
| Pediatric | Positive Affect v1.0 | Forrest, C.B., Ravens-Sieberer, U., Devine, J., Becker, B.D., Teneralli, R.E., Moon, J., et al. (2018). Development and Evaluation of the PROMIS® Pediatric Positive Affect Item Bank, Child-Report and Parent-Proxy Editions. Journal of Happiness Studies, 19(3), 699-718. |
| Pediatric |
Stigma v1.0 – v1.1 Stigma—Skin v1.0 – v1.1 |
Lai J.S., Nowinski C., Rangel S.M., Batra S.T., Mueller K., Chamlin S., Ustsinovich V., Cella D., Mansolf M., Paller A.S. (2024). Development of the PROMIS pediatric stigma and extension to the PROMIS pediatric stigma: skin item banks. Quality of Life Research, 33(3):865-873. doi: 10.1007/s11136-023-03574-z. PMID: 38170419 Phan, S., Rangel, S. M., Griffith, J., Ren, Z., Lai, J. S., & Paller, A. S. (2022). The Burden of Stigma in Pediatric Atopic Dermatitis: Measurement Using the New, Validated PROMIS Pediatric 16 Stigma and Skin Modulate. Acta Dermato-Venereological, 102:10-11. |
| Pediatric PROMIS Social Health Measures | ||
| Respondent | Measures | Citation(s) |
| Pediatric | Family Relationships v1.0 |
Bevans KB, Riley AW, Landgraff JM, et al. Children's Family Experiences: Development of the PROMIS® Pediatric Family Relationships Measures. Quality of Life Research. 2017 Reliability and validity of PROMIS pediatric family relationships short form in children 8–17 years of age with chronic disease. Cox, E.D., Connolly, J.R., Palta, M. et al. (2019). Quality of Life Research, 29, 191-199. https://doi.org/10.1007/s11136-01902266-x |
| Pediatric | Peer Relationships v1.0 – v2.0 | DeWalt, D.A., Thissen, D., Stucky, B.D., Langer, M.M., Morgan Dewitt, E., et al. (2013). PROMIS Pediatric Peer Relationships Scale: Development of a Peer Relationships Item Bank as Part of Social Health Measurement. Health Psychology, 32(10), 1093-1103. |
| Pediatric | Peer Relationships GenPop v3.0 |
Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Pediatric PROMIS Global Health Measures | ||
| Respondent | Measures | Citation(s) |
| Pediatric |
Global Health (7 items) v1.0 Global Health (7+2 items) v1.0 |
Forrest, C.B., Bevans, K.B., Pratiwadi, R., Moon, J., Teneralli, R.E., Minton, J.M., & Tucker, C.A. (2014). Development of the PROMIS Pediatric Global Health (PGH-7) Measure. Quality of Life Research, 23(4), 1221-1231. Forrest, C., Tucker, C., Ravens-Sieberer, U., Pratiwadi, R., Moon, J., Teneralli, R., et al. (2015). Concurrent Validity of the PROMIS® Pediatric Global Health Measure. Quality of Life Research, 25(3), 739-751. |
| Pediatric |
Global Health (7 items) GenPop v3.0 Global Health (7+2 items) GenPop v3.0 |
No reference available |
| Pediatric PROMIS Profiles | ||
| Respondent | Measures | Citation(s) |
| Pediatric |
v1.0 – v2.1 |
No reference available |
| Pediatric |
GenPop v3.0 |
No reference available |
Parent Proxy
| Parent Proxy PROMIS Physical Health Measures | ||
| Respondent | Measures | Citation(s) |
| Parent Proxy | Asthma Impact v1.0 – v2.0 |
Yeatts, K. B., Stucky, B. D., Thissen, D., Irwin, D., Varni, J. W., DeWitt, E. M., Lai, J-S., & DeWalt, D. A. (2010). Construction of the Pediatric Asthma Impact Scale (PAIS) for the PatientReported Outcomes Measurement Information system (PROMIS). Journal of Asthma, 47(3), 295-302. Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. |
| Parent Proxy | Fatigue v1.0 – v2.0 | Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. |
| Parent Proxy | Fatigue GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy | Itch (PIQ-C) v1.0 |
No reference available |
| Parent Proxy | Mobility v1.0 – v2.0 |
Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. |
| Parent Proxy | Mobility GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy | Pain Behavior v1.0 | No reference available |
| Parent Proxy | Pain Behavior GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy | Pain Intensity - Numeric Rating Scale v1.0 | No reference available |
| Parent Proxy | Pain Interference GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy | Pain Interference v1.0 – v2.0 |
Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. Varni, J., Thissen, D., Stucky, B., Liu, Y., Magnus, B., Quinn, H., et al. (2014). PROMIS® Parent Proxy Report Scales for Children Ages 5–7 years: An Item Response Theory Analysis of Differential Item Functioning across Age Groups. Quality of Life Research, 23(1), 349-361. |
| Parent Proxy | Physical Activity v1.0 | Tucker, C. A., Bevans, K. B., Becker, B. D., Teneralli, R., & Forrest, C. B. (2020). Development of the PROMIS Pediatric Physical Activity Item Banks. Physical Therapy, 100(8), 1393–1410. https://doi.org/10.1093/ptj/pzaa074 |
| Parent Proxy | Strength Impact v1.0 |
No reference available (see references for Pediatric self-report above). |
| Parent Proxy | Upper Extremity v1.0 – v2.0 | Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. |
| Parent Proxy | Upper Extremity GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy PROMIS Mental Health Measures | ||
| Respondent | Measures | Citation(s) |
| Parent Proxy | Anger v1.0 – v2.0 |
Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. |
| Parent Proxy | Anger GenPop v3.0 |
Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy | Anxiety v1.0 – v2.0 | Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. |
| Parent Proxy | Anxiety GenPop v3.0 |
Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy | Depressive Symptoms v1.0 – v2.0 | Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. |
| Parent Proxy | Depressive Symptoms GenPop v3.0 | Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy | Life Satisfaction v1.0 |
Forrest, C.B., Devine, J., Bevans, K.B., Becker, B.D., Carle, A.C., Teneralli, R.E., et al. (2017). Development and Psychometric Evaluation of the PROMIS Pediatric Life Satisfaction Item Banks, Child-Report, and Parent-Proxy Editions. Quality of Life Research. 2018 Jan;27(1):217-234. |
| Parent Proxy | Meaning and Purpose v1.0 | Ravens-Sieberer U, Devine J, Bevans K, Riley AW, Moon J, Salsman JM, et al. (2014). Subjective well-being measures for children were developed within the PROMIS project: Presentation of first results. Journal of Clinical Epidemiology, 67(2), 207-218. |
| Parent Proxy | Physical and Psychological Stress Experiences v1.0 |
Bevans, K.B., Gardner, W., Pajer, K., Riley, A.W., & Forrest, C.B. (2013). Qualitative Development of the PROMIS® Pediatric Stress Response Item Banks. Journal of Pediatric Psychology, 38(2), 173-191. Bevans, K.B., Gardner, W., Pajer, K.A., Becker, B., Carle, A., Tucker, C.A., & Forrest, C.B. (2018). Psychometric Evaluation of the PROMIS® Pediatric Psychological and Physical Stress Experiences Measures. Journal of Pediatric Psychology. |
| Parent Proxy | Positive Affect v1.0 | Forrest CB, Ravens-Sieberer U, Devine J, et al. Development and Evaluation of the PROMIS® Pediatric Positive Affect Item Bank, Child-Report and Parent-Proxy Editions. Journal of Happiness Studies. 2017:1-20. |
| Parent Proxy |
Stigma v1.0 Stigma—Skin v1.0 |
No reference available |
| Parent Proxy PROMIS Social Health Measures | ||
| Respondent | Measures | Citation(s) |
| Parent Proxy | Peer Relationships v1.0 |
Irwin, D., Gross, H., Stucky, B., Thissen, D., Morgan DeWitt, E., Lai, J.S., et al. (2012). Development of Six PROMIS Pediatrics Proxy-Report Item Banks. Health and Quality of Life Outcomes, 10(1), 22. |
| Parent Proxy | Peer Relationships v2.0 | No reference available |
| Parent Proxy | Peer Relationships GenPop v3.0 |
Lai, J. S., Tang, X., Schalet, B. D., Kallen, M. A., Kaat, A. J., & Cella, D. (2023). The PROMIS Pediatric Item Banks Norming Project. Journal of Patient-Reported Outcomes, 7(1): O84. |
| Parent Proxy PROMIS Global Health Measures | ||
| Respondent | Measures | Citation(s) |
| Parent Proxy |
Global Health (7 items) v1.0 Global Health (7+2 items) v1.0 |
Forrest, C., Tucker, C., Ravens-Sieberer, U., Pratiwadi, R., Moon, J., Teneralli, R., et al. (2015). Concurrent Validity of the PROMIS® Pediatric Global Health Measure. Quality of Life Research, 25(3), 739-751. Forrest, C.B., Bevans, K.B., Pratiwadi, R., Moon, J., Teneralli, R.E., Minton, J.M., & Tucker, C.A. (2014). Development of the PROMIS (R) Pediatric Global Health (Pgh-7) Measure. Quality of Life Research, 23(4), 1221-1231. |
| Parent Proxy |
Global Health (7 items) GenPop v3.0 Global Health (7+2 items) GenPop v3.0 |
No reference available |
| Parent Proxy PROMIS Profiles | ||
| Respondent | Measures | Citation(s) |
| Parent Proxy |
v2.0 |
No reference available |
| Parent Proxy |
GenPop v2.0 |
No reference available |
Early Childhood
| Early Childhood Parent-Report PROMIS Physical Health Measures | ||
| Respondent | Measures | Citation(s) |
| Early Childhood Parent Report |
Physical Activity v1.0 |
Lai, J.S., Blackwell, C.K., Tucker, C.A., Jensen, S.E., & Cella, D. (2022). Measuring PROMIS® Physical Activity and Sleep Problems in Early Childhood. Journal of Pediatric Psychology, 47(5), 534-546. |
| Early Childhood Parent Report |
Sleep Problems v1.0 |
Lai, J.S., Blackwell, C.K., Tucker, C.A., Jensen, S.E., & Cella, D. (2022). Measuring PROMIS® Physical Activity and Sleep Problems in Early Childhood. Journal of Pediatric Psychology, 47(5), 534-546. |
| Early Childhood Parent-Report PROMIS Mental Health Measures | ||
| Respondent | Measures | Citation(s) |
| Early Childhood Parent Report | Anger/Irritability v1.0 |
Sherlock, P., Blackwell, C.K., Kallen, M.A., Lai, J.S., Cella, D, Krogh-Jespersen, S., Luby, J.L., Buss, K.A., Burns, J., & Wakschlag, L.S. (2022). Measuring PROMIS® Emotional Distress in Early Childhood. Journal of Pediatric Psychology, 47(5), 547-558. |
| Early Childhood Parent Report | Anxiety v1.0 |
Sherlock, P., Blackwell, C.K., Kallen, M.A., Lai, J.S., Cella, D, Krogh-Jespersen, S., Luby, J.L., Buss, K.A., Burns, J., & Wakschlag, L.S. (2022). Measuring PROMIS® Emotional Distress in Early Childhood. Journal of Pediatric Psychology, 47(5), 547-558. |
| Early Childhood Parent Report | Depressive Symptoms v1.0 | Sherlock, P., Blackwell, C.K., Kallen, M.A., Lai, J.S., Cella, D, Krogh-Jespersen, S., Luby, J.L., Buss, K.A., Burns, J., & Wakschlag, L.S. (2022). Measuring PROMIS® Emotional Distress in Early Childhood. Journal of Pediatric Psychology, 47(5), 547-558. |
| Early Childhood Parent Report |
Engagement – Curiosity v1.0 Engagement – Persistence v1.0 |
Blackwell, C.K., Kallen, M.A., Lai, J.S., Bevans, K.B., Wakschlag, L.S., & Cella, D. (2022). Measuring PROMIS® Well-Being in Early Childhood. Journal of Pediatric Psychology, 47(5), 559-572. |
| Early Childhood Parent Report | Positive Affect v1.0 | Blackwell, C.K., Kallen, M.A., Lai, J.S., Bevans, K.B., Wakschlag, L.S., & Cella, D. (2022). Measuring PROMIS® Well-Being in Early Childhood. Journal of Pediatric Psychology, 47(5), 559-572. |
| Early Childhood Parent Report |
Self-Regulation – Flexibility v1.0 Self-Regulation – Frustration Tolerance v1.0 |
Blackwell, C.K., Kallen, M.A., Lai, J.S., Bevans, K.B., Wakschlag, L.S., & Cella, D. (2022). Measuring PROMIS® Well-Being in Early Childhood. Journal of Pediatric Psychology, 47(5), 559-572. |
| Early Childhood Parent-Report PROMIS Social Health Measures | ||
| Respondent | Measures | Citation(s) |
| Early Childhood Parent Report |
Social Relationships v1.0 |
Blackwell, C.K., Lai, J.S., Kallen, M., Bevans, K.B., Davis, M.M., Wakschlag, L.S., & Cella, D. Measuring PROMIS® Social Relationships in Early Childhood. Journal of Pediatric Psychology, 47(5), 573-584. |
| Early Childhood Parent-Report PROMIS Social Health Measures | ||
| Respondent | Measures | Citation(s) |
| Early Childhood Parent Report |
Global Health v1.0 |
Kallen, M.A., Lai, J.S., Blackwell, C.K., Schuchard, J.R., Forrest, C.B., Wakschlag, L.S., & Cella, D. (2022). Measuring PROMIS® Global Health in Early Childhood. Journal of Pediatric Psychology, 47(5), 523-533. |
Last updated on 04/21/2025