Publications

Aaron, A., David, N. B., Nicole, S., Lauren, U., David, R., & Robin, N. K. (2017). Impact of Health Literacy on Time Spent Seeking Hand Care. Hand, 1558944717708027. https://www.ncbi.nlm.nih.gov/pubmed/28513193

Adams, J. R., Ray, D., Willmon, R., Pulgar, S., & Dasari, A. (2019). Living With Neuroendocrine Tumors: Assessment of Quality of Life Through a Mobile Application. JCO Clinical Cancer Informatics(3), 1-10. https://www.ncbi.nlm.nih.gov/pubmed/31283354

Adkins, E. C., DeYonker, O., Duffecy, J., Hooker, S. A., & Baron, K. G. (2019). Predictors of intervention interest among individuals with short sleep duration. Journal of Clinical Sleep Medicine, 15(08), 1143-1148. https://www.ncbi.nlm.nih.gov/pubmed/31482836

Adler, J., Saeed, S. A., Eslick, I. S., Provost, L., Margolis, P. A., & Kaplan, H. C. (2016). Appreciating the Nuance of Daily Symptom Variation to Individualize Patient Care. eGEMs, 4(1), 1247. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4909374/

Adroher, N. D., Kreiner, S., Young, C., Mills, R., & Tennant, A. (2019). Test equating sleep scales: applying the Leunbach's model. BMC Medical Research Methodology, 19(1), 141-141. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6613254/

Agochukwu, N. Q., Wittmann, D., Boileau, N. R., Dunn, R. L., Montie, J. E., Kim, T., . . . Michigan Urological Surgery Improvement Collaborative. (2019). Validity of the Patient-Reported Outcome Measurement Information System (PROMIS) Sexual Interest and Satisfaction Measures in Men Following Radical Prostatectomy. Journal of Clinical Oncology. https://www.ncbi.nlm.nih.gov/pubmed/31232671

Ahmad, F. S., Kaiser, K., Schifferdecker, K. E., Adachi-Mejia, A. M., Eisenstein, A., Greene, G. J., . . . Fisher, E. S. (2015). Creating Heart Failure-specific Measures From PROMIS®. Circulation, 132(Suppl 3), A17039. http://circ.ahajournals.org/content/132/Suppl_3/A17039.abstract

Ahmad, F. S., Kallen, M. A., Schifferdecker, K. E., Carluzzo, K. L., Yount, S. E., Gelow, J. M., . . . Cella, D. (2019). Development and Initial Validation of the PROMIS®-Plus-HF Profile Measure. Circulation: Heart Failure, 12(6). https://www.ncbi.nlm.nih.gov/pubmed/31163985

Ahmed, S., Ware, P., Gardner, W., Witter, J., Bingham, C. O., 3rd, Khairy, D., & Bartlett, S. J. (2017). Montreal Accord on Patient-Reported Outcomes Use Series- Paper 8: Patient Reported Outcomes (PRO) in Electronic Health Records Can Inform Clinical and Policy Decisions. Journal of Clinical Epidemiology. http://dx/doi.org/10.1016/j.jclinepi.2017.04.011

Ahn, H., Sorkpor, S., Miao, H., Zhong, C., Jorge, R., Park, L., . . . Cho, R. Y. (2019). Home-based self-administered transcranial direct current stimulation in older adults with knee osteoarthritis pain: An open-label study. Journal of Clinical Neuroscience. https://www.ncbi.nlm.nih.gov/pubmed/31153751

Akshoomoff, N., Brown, T. T., Bakeman, R., & Hagler Jr, D. J. (2018). Developmental differentiation of executive functions on the NIH Toolbox Cognition Battery. Neuropsychology, 32(7), 777-783. https://www.ncbi.nlm.nih.gov/pubmed/30321034

Al Maghaireh, D. a. F., Abdullah, K. L., Chong, M. C., Chua, Y. P., & Al Kawafha, M. M. (2017). Stress, Anxiety, Depression and Sleep Disturbance among Jordanian Mothers and Fathers of Infants Admitted to Neonatal Intensive Care Unit: A Preliminary Study. Journal of Pediatric Nursing, 36, 132-140. http://dx.doi.org/10.1016/j.pedn.2017.06.007

Alcantara, J., Alcantara, J. D., & Alcantara, J. (2015). The use of validated outcome measures in the chiropractic care of pregnant patients: A systematic review of the literature. Complementary Therapies in Clinical Practice, 21(2), 131-136. http://dx.doi.org/10.1016/j.ctcp.2015.01.003

Alcantara, J., Lamont, A. E., Ohm, J., & Alcantara, J. (2017). The Quality of Life of Children Under Chiropractic Care Using PROMIS-25: Results from a Practice-Based Research Network. Journal of Alternative and Complementary Medicine. https://www.ncbi.nlm.nih.gov/pubmed/29260883

Alcantara, J., Nazarenko, A. L., Ohm, J., & Alcantara, J. (2017). The Use of the Patient Reported Outcomes Measurement Information System and the RAND VSQ9 to Measure the Quality of Life and Visit-Specific Satisfaction of Pregnant Patients Under Chiropractic Care Utilizing the Webster Technique. Journal of Alternative and Complementary Medicine, 24(1), 90–98. https://www.ncbi.nlm.nih.gov/pubmed/29260894

Alcantara, J., Ohm, J., & Alcantara, J. (2016). The use of PROMIS and the RAND VSQ9 in chiropractic patients receiving care with the Webster Technique. Complementary Therapies in Clinical Practice, 23, 110-116. https://www.ncbi.nlm.nih.gov/pubmed/25990687

Alcantara, J., Ohm, J., & Alcantara, J. (2017). Comparison of pediatric self reports and parent proxy reports utilizing PROMIS: Results from a chiropractic practice-based research network. Complementary Therapies in Clinical Practice, 29, 48-52. https://www.ncbi.nlm.nih.gov/pubmed/29122268

Alcantara, J., Ohm, J., & Alcantara, J. (2017). The quality of life of chiropractors using PROMIS: Results from a practice-based research network. Complementary Therapies in Clinical Practice, 29, 142-146. https://doi.org/10.1016/j.ctcp.2017.09.011

Alcantara, J., Whetten, A., Ohm, J., & Alcantara, J. (2020). The quality of life of children under chiropractic care as measured by the PROMIS parent-proxy short forms. Complementary Therapies in Clinical Practice, 39, 101134. https://pubmed.ncbi.nlm.nih.gov/32379669/

Alcantara, J., Whetten, A., Ohm, J., & Alcantara, J. (2020). The relationship between quality of life and sense of coherence in patients presenting for care in a chiropractic practice-based research network. Complementary Therapies in Medicine, 48. https://www.ncbi.nlm.nih.gov/pubmed/31987243

Alexander, A. M., Flynn, K. E., Hahn, E. A., Jeffery, D. D., Keefe, F. J., Reeve, B. B., . . . Weinfurt, K. P. (2014). Improving Patients' Understanding of Terms and Phrases Commonly Used in Self-Reported Measures of Sexual Function. The Journal of Sexual Medicine, 11(8), 1991-1998. http://dx.doi.org/10.1111/jsm.12599

Alexander, J. H., Jordan, S. W., West, J. M., Compston, A., Fugitt, J., Bowen, J. B., . . . Scharschmidt, T. J. (2019). Targeted muscle reinnervation in oncologic amputees: Early experience of a novel institutional protocol. Journal of Surgical Oncology. https://www.ncbi.nlm.nih.gov/pubmed/31197851

Alfano, L. N., Miller, N. F., Iammarino, M. A., Moore Clingenpeel, M., Lowes, S. L., Dugan, M. E., . . . Lowes, L. P. (2019). ACTIVE (Ability Captured Through Interactive Video Evaluation) workspace volume video game to quantify meaningful change in spinal muscular atrophy. Developmental Medicine and Child Neurology, 0(0). https://www.ncbi.nlm.nih.gov/pubmed/30963554

Alkhatib, H., Tastaldi, L., Krpata, D. M., Petro, C. C., Fafaj, A., Rosenblatt, S., . . . Prabhu, A. S. (2019). Outcomes of transversus abdominis release (TAR) with permanent synthetic retromuscular reinforcement for bridged repairs in massive ventral hernias: a retrospective review. Hernia. https://www.ncbi.nlm.nih.gov/pubmed/31549325

Alkhatib, H., Tastaldi, L., Krpata, D. M., Scheman, J., Petro, C. C., Fafaj, A., . . . Prabhu, A. S. (2019). Prevalence of posttraumatic stress disorder (PTSD) in patients with an incisional hernia. American Journal of Surgery. https://www.ncbi.nlm.nih.gov/pubmed/30878218

Allen, J., Alpass, F. M., & Stephens, C. V. (2018). The sensitivity of the MOS SF-12 and PROMIS® global summary scores to adverse health events in an older cohort. Quality of Life Research. https://www.ncbi.nlm.nih.gov/pubmed/29725968

Allen, K. D., Somers, T. J., Campbell, L. C., Arbeeva, L., Coffman, C. J., Cené, C. W., . . . Keefe, F. J. (2019). Pain coping skills training for African Americans with osteoarthritis: results of a randomized controlled trial. Pain. https://www.ncbi.nlm.nih.gov/pubmed/30913165

Almario, C. V., Ballal, M. L., Chey, W. D., Nordstrom, C., Khanna, D., & Spiegel, B. M. R. (2018). Burden of Gastrointestinal Symptoms in the United States: Results of a Nationally Representative Survey of Over 71,000 Americans. American Journal of Gastroenterology. https://www.ncbi.nlm.nih.gov/pubmed/30323268

Almario, C. V., Chey, W. D., Khanna, D., Mosadeghi, S., Ahmed, S., Afghani, E., . . . Spiegel, B. M. R. (2016). Impact of National Institutes of Health Gastrointestinal PROMIS Measures in Clinical Practice: Results of a Multicenter Controlled Trial. American Journal of Gastroenterology, 16(4), 462-466.e462. https://www.ncbi.nlm.nih.gov/pubmed/27481311

Alonso, J., Bartlett, S., Rose, M., Aaronson, N., Chaplin, J., Efficace, F., . . . Forrest, C. (2013). The case for an international patient-reported outcomes measurement information system (PROMIS(R)) initiative. Health and Quality of Life Outcomes, 11(1), 210. http://dx.doi.org/10.1186/1477-7525-11-210

Alschuler, K. N., Jensen, M. P., Goetz, M. C., Smith, A. E., Verrall, A. M., & Molton, I. R. (2012). Effects of pain and fatigue on physical functioning and depression in persons with muscular dystrophy. Disability and Health Journal, 5(4), 277-283. http://dx.doi.org/10.1016/j.dhjo.2012.07.00

Alschuler, K. N., Jensen, M. P., Sullivan-Singh, S. J., Borson, S., Smith, A. E., & Molton, I. R. (2013). The association of age, pain, and fatigue with physical functioning and depressive symptoms in persons with spinal cord injury. Journal of Spinal Cord Medicine, 36(5), 483-491. http://dx.doi.org/10.1179/2045772312Y.0000000072

Alvarez-Nebreda, M. L., Heng, M., Rosner, B., McTague, M., Javedan, H., Harris, M. B., & Weaver, M. J. (2018). Reliability of Proxy-reported Patient-reported Outcomes Measurement Information System Physical Function and Pain Interference Responses for Elderly Patients With Musculoskeletal Injury. Journal of the American Academy of Orthopaedic Surgeons. https://www.ncbi.nlm.nih.gov/pubmed/30256341

Alves, F. S., Pinto Rde, M., Mendonca, T. M., & Silva, C. H. (2014). Portuguese-language translation and cross-cultural adaptation of the Fatigue domain of Patient-Reported-Outcomes Measurement Information System (PROMIS). Cadernos de Saude Publica, 30(5), 1103-1110. http://dx.doi.org/10.1590/0102-311X00104513

Ameringer, S., Elswick, R. K., Jr., & Smith, W. (2014). Fatigue in adolescents and young adults with sickle cell disease: biological and behavioral correlates and health-related quality of life. Journal of Pediatric Oncology Nursing, 31(1), 6-17. http://dx.doi.org/10.1177/1043454213514632

Ameringer, S., Elswick, R. K., Jr., Menzies, V., Robins, J. L., Starkweather, A., Walter, J., . . . Jallo, N. (2016). Psychometric Evaluation of the Patient-Reported Outcomes Measurement Information System Fatigue-Short Form Across Diverse Populations. Nursing Research, 65(4), 279-289. https://www.ncbi.nlm.nih.gov/pubmed/27362514

Amtmann, D., Askew, R. L., Kim, J., Chung, H., Ehde, D. M., Bombardier, C. H., . . . Johnson, K. L. (2015). Pain Affects Depression Through Anxiety, Fatigue, and Sleep in Multiple Sclerosis. Rehabilitation Psychology, 60(1), 81-90. http://dx.doi.org/10.1037/rep0000027

Amtmann, D., Bamer, A. M., Kim, J., Chung, H., & Salem, R. (2017). People with multiple sclerosis report significantly worse symptoms and health related quality of life than the US general population as measured by PROMIS and NeuroQoL outcome measures. Disability and Health Journal, 11(1), 99-107. http://doi.org/10.1016/j.dhjo.2017.04.008

Amtmann, D., Bamer, A. M., McMullen, K., Gibran, N. S., Hoffman, J. M., Bombardier, C. H., & Carrougher, G. J. (2020). Pain Across Traumatic Injury Groups: A National Institute on Disability, Independent Living, and Rehabilitation Research Model Systems Study. Journal of Trauma and Acute Care Surgery. https://pubmed.ncbi.nlm.nih.gov/32590556/

Amtmann, D., Cook, K. F., Jensen, M. P., Chen, W.-H., Choi, S., Revicki, D., . . . Callahan, L. (2010). Development of a PROMIS item bank to measure pain interference. Pain, 150(1), 173-182. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2916053/

Amtmann, D., Cook, K. F., Johnson, K. L., & Cella, D. (2011). The PROMIS Initiative: Involvement of Rehabilitation Stakeholders in Development and Examples of Applications in Rehabilitation Research. Archives of Physical Medicine and Rehabilitation, 92(10, Supplement), S12-S19. http://dx.doi.org/10.1016/j.apmr.2011.04.025

Amtmann, D., Kim, J., Chung, H., Askew, R. L., Park, R., & Cook, K. F. (2016). Minimally important differences for Patient Reported Outcomes Measurement Information System pain interference for individuals with back pain. Journal of Pain Research, 9, 251-255. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4854267/

Amtmann, D., Kim, J., Chung, H., Bamer, A. M., Askew, R. L., Wu, S., . . . Johnson, K. L. (2014). Comparing CESD-10, PHQ-9, and PROMIS Depression Instruments in Individuals With Multiple Sclerosis. Rehabilitation Psychology, 59(2), 220-229. http://dx.doi.org/10.1037/a0035919

Amtmann, D., McMullen, K., Bamer, A., Fauerbach, J. A., Gibran, N. S., Herndon, D., . . . Miller, A. C. (2017). National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System: Review of Program and Database. Archives of Physical Medicine and Rehabilitation. https://www.ncbi.nlm.nih.gov/pubmed/28989076

An, T. W., Cassinelli, S., Charlton, T. P., Pfeffer, G. B., & Thordarson, D. B. (2019). Radiographic and Magnetic Resonance Imaging of the Symptomatic Synthetic Cartilage Implant. Foot and Ankle International. https://www.ncbi.nlm.nih.gov/pubmed/31538827

Anand, L., Du Bois, S. N., Sher, T. G., & Grotkowski, K. (2017). Defying Tradition: Gender Roles in Long-Distance Relationships. The Family Journal, 26(1), 22-30. https://doi.org/10.1177/1066480717731342

Anantavorasakul, N., Lans, J., Macken, A. A., Sood, R. F., Chen, N. C., & Eberlin, K. R. (2020). Surgery for lower extremity symptomatic neuroma: Long-term outcomes. Journal of Plastic, Reconstructive and Aesthetic Surgery. https://pubmed.ncbi.nlm.nih.gov/32513643/

Ananthakrishnan, A. N., Long, M. D., Martin, C. F., Sandler, R. S., & Kappelman, M. D. (2013). Sleep Disturbance and Risk of Active Disease in Patients With Crohn's Disease and Ulcerative Colitis. Clinical Gastroenterology and Hepatology, 11(8), 965-971. http://dx.doi.org/10.1016/j.cgh.2013.01.021

Anatchkova, M., & Bjorner, J. (2010). Health and role functioning: the use of focus groups in the development of an item bank. Quality of Life Research, 19(1), 111-123. http://dx.doi.org/10.1007/s11136-009-9570-3

Anderson, L. M., Smith, K. E., Nuñez, M. C., & Farrell, N. R. (2019). Family accommodation in eating disorders: a preliminary examination of correlates with familial burden and cognitive-behavioral treatment outcome. Eating Disorders. https://www.ncbi.nlm.nih.gov/pubmed/31414973

Anderson, M. R., Baumhauer, J. F., DiGiovanni, B. F., Flemister, S., Ketz, J. P., Oh, I., & Houck, J. R. (2018). Determining Success or Failure After Foot and Ankle Surgery Using Patient Acceptable Symptom State (PASS) and Patient Reported Outcome Information System (PROMIS). Foot and Ankle International. https://www.ncbi.nlm.nih.gov/pubmed/29791196

Anderson, M. R., Jeff, R. H., Charles, L. S., Man, H., Florian, N., Alexej, B., . . . Judith, F. B. (2018). Validation and Generalizability of Preoperative PROMIS Scores to Predict Postoperative Success in Foot and Ankle Patients. Foot and Ankle International. https://www.ncbi.nlm.nih.gov/pubmed/29620940

Anixt, J. S., Murray, D. S., Coury, D. L., Kuhlthau, K. A., Eskra, D., Seide, J., . . . Lannon, C. (2020). Improving Behavior Challenges and Quality of Life in the Autism Learning Health Network. Pediatrics, 145(Suppl 1), S20-s29. https://pubmed.ncbi.nlm.nih.gov/32238528/

Anthony, C. A., Glass, N. A., Hancock, K., Bollier, M., Wolf, B. R., & Hettrich, C. M. (2017). Performance of PROMIS Instruments in Patients With Shoulder Instability. American Journal of Sports Medicine, 45(2), 449-453. http://dx.doi.org/10.1177/0363546516668304

Anthony, C. A., Glass, N., Hancock, K., Bollier, M., Hettrich, C. M., & Wolf, B. R. (2017). Preoperative Performance of the Patient-Reported Outcomes Measurement Information System in Patients With Rotator Cuff Pathology. Arthroscopy, 45(2), 449-453. https://www.ncbi.nlm.nih.gov/pubmed/28655475

Apple, A. C., Ryals, A. J., Alpert, K. I., Wagner, L. I., Shih, P.-A., Dokucu, M., . . . Wang, L. (2017). Subtle hippocampal deformities in breast cancer survivors with reduced episodic memory and self-reported cognitive concerns. NeuroImage.Clinical, 14, 685-691. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5369871/

Armstrong, N. M., Gitlin, L. N., Parisi, J. M., Carlson, M. C., Rebok, G. W., & Gross, A. L. (2017). E pluribus unum: Harmonization of physical functioning across intervention studies of middle-aged and older adults. PLoS ONE, 12(7), e0181746. https://www.ncbi.nlm.nih.gov/pubmed/28753644

Arnedt, J. T. (2012). PROMIS™ of Improved Tools for Assessing Sleep and Wake Function: Commentary on “Development of Short Forms from the PROMIS™ Sleep Disturbance and Sleep-Related Impairment Item Banks”. Behavioral Sleep Medicine, 10(1), 25-27. http://dx.doi.org/10.1080/15402002.2012.636267

Arruda, J. M., Bogetz, A. L., Vellanki, S., Wren, A., & Yeh, A. M. (2018). Yoga as adjunct therapy for adolescents with inflammatory bowel disease: A pilot clinical trial. Complementary Therapies in Medicine, 41, 99-104. https://www.ncbi.nlm.nih.gov/pubmed/30477870

Arvanitis, M., DeWalt, D. A., Martin, C. F., Long, M. D., Chen, W., Jaeger, B., . . . Kappelman, M. D. (2016). Patient-Reported Outcomes Measurement Information System in Children with Crohn's Disease. Journal of Pediatrics, 174, 153–159.e152. http://dx.doi.org/10.1016/j.jpeds.2016.03.069

Askew, R. L., Cook, K. F., Keefe, F. J., Nowinski, C. J., Cella, D., Revicki, D. A., . . . Amtmann, D. (2016). A PROMIS Measure of Neuropathic Pain Quality. Value in Health, 19(5), 623-630. http://dx.doi.org/10.1016/j.jval.2016.02.009

Askew, R. L., Cook, K. F., Revicki, D. A., Cella, D., & Amtmann, D. (2016). Evidence from diverse clinical populations supported clinical validity of PROMIS pain interference and pain behavior. Journal of Clinical Epidemiology, 73, 103-111. https://www.ncbi.nlm.nih.gov/pubmed/26931296

Askew, R. L., Kim, J., Chung, H., Cook, K. F., Johnson, K., & Amtmann, D. (2013). Development of a crosswalk for pain interference measured by the BPI and PROMIS pain interference short form. Quality of Life Research, 22(10), 2769-2776. http://dx.doi.org/10.1007/s11136-013-0398-5

Atwell, T. D., Schultz, G. G., Leibovich, B. C., Schmit, G. D., Boorjian, S. A., Kurup, A. N., . . . Yost, K. J. (2019). Patient-Reported Outcomes After Percutaneous Renal Ablation: Initial Experience. American Journal of Roentgenology, 1-5. https://www.ncbi.nlm.nih.gov/pubmed/30620680

Aubel, D. (2019). Patient-reported outcomes from a workplace intervention program for cancer survivors highlight ongoing needs to support continuation of work. Supportive Care in Cancer. https://www.ncbi.nlm.nih.gov/pubmed/31281940

Auld, J. P., Mudd, J. O., Gelow, J. M., Lyons, K. S., Hiatt, S. O., & Lee, C. S. (2019). Device-detected congestion is associated with worse patient-reported outcomes in heart failure. Heart and Lung. https://www.ncbi.nlm.nih.gov/pubmed/30611529

Austin, D. C., Torchia, M. T., Moschetti, W. E., Jevsevar, D. S., & Keeney, B. J. (2019). Patient outcomes after total hip arthroplasty in extreme elderly patients older than 80 years. HIP International. https://www.ncbi.nlm.nih.gov/pubmed/30945561

Austin, D. C., Torchia, M. T., Moschetti, W. E., Jevsevar, D. S., & Keeney, B. J. (2018). Patient Outcomes After Total Knee Arthroplasty in Patients Older Than 80 Years. Journal of Arthroplasty. https://www.ncbi.nlm.nih.gov/pubmed/30100133

Austin, D. C., Torchia, M. T., Werth, P. M., Lucas, A. P., Moschetti, W. E., & Jevsevar, D. S. (2019). A One-Question Patient-Reported Outcome Measure Is Comparable to Multiple-Question Measures in Total Knee Arthroplasty Patients. Journal of Arthroplasty. https://www.ncbi.nlm.nih.gov/pubmed/31439407

Azar, M., Rice, D. B., Kwakkenbos, L., Carrier, M.-E., Shrier, I., Bartlett, S. J., . . . Thombs, B. D. (2017). Exercise habits and factors associated with exercise in systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study. Disability and Rehabilitation, 40(17), 1997-2003. https://www.ncbi.nlm.nih.gov/pubmed/28478701

Babington, J. R., Edwards, A., Wright, A., Dykstra, T., Friedman, A. S., & Sethi, R. K. (2017). Patient-Reported Outcome Measures: Utility for Predicting Spinal Surgery in an Integrated Spine Practice. PM & R: The Journal of Injury, Function, and Rehabilitation, 10(7), 724-729. https://www.ncbi.nlm.nih.gov/pubmed/29288142

Bacalao, E. J., Greene, G. J., Beaumont, J. L., Eisenstein, A., Muftic, A., Mandelin, A. M., . . . Ruderman, E. M. (2017). Standardizing and personalizing the treat to target (T2T) approach for rheumatoid arthritis using the Patient-Reported Outcomes Measurement Information System (PROMIS): baseline findings on patient-centered treatment priorities. Clinical Rheumatology, 36(8), 1729-1736. https://www.ncbi.nlm.nih.gov/pubmed/28653263

Badawy, S. M., Barrera, L., Cai, S., & Thompson, A. A. (2018). Association between Participants' Characteristics, Patient-Reported Outcomes, and Clinical Outcomes in Youth with Sickle Cell Disease. BioMed Research International, 2018. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6076920/

Badawy, S. M., Thompson, A. A., & Liem, R. I. (2018). Beliefs about hydroxyurea in youth with sickle cell disease. Hematology/Oncology and Stem Cell Therapy. https://www.ncbi.nlm.nih.gov/pubmed/29397333

Badawy, S. M., Thompson, A. A., Holl, J. L., Penedo, F. J., & Liem, R. I. (2019). Healthcare utilization and hydroxyurea adherence in youth with sickle cell disease. Pediatric Hematology and Oncology, 1-12. https://www.ncbi.nlm.nih.gov/pubmed/30636474

Badawy, S. M., Thompson, A. A., Lai, J.-S., Penedo, F. J., Rychlik, K., & Liem, R. I. (2017). Adherence to hydroxyurea, health-related quality of life domains, and patients’ perceptions of sickle cell disease and hydroxyurea: a cross-sectional study in adolescents and young adults. Health and Quality of Life Outcomes, 15, 136. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5498866/

Badawy, S. M., Thompson, A. A., Penedo, F. J., Lai, J.-S., Rychlik, K., & Liem, R. I. (2017). Barriers to Hydroxyurea Adherence and Health-related Quality of Life in Adolescents and Young Adults with Sickle Cell Disease. European Journal of Haematology, 98(6), 608-614. https://www.ncbi.nlm.nih.gov/pubmed/28306171

Badger, T. A., Heitkemper, M., Lee, K. A., & Bruner, D. W. (2014). An experience with the Patient-Reported Outcomes Measurement Information System: pros and cons and unanswered questions. Nursing Outlook, 62(5), 332-338. http://dx.doi.org/10.1016/j.outlook.2014.06.009

Badr, H., Lipnick, D., Gupta, V., & Miles, B. (2016). Survivorship Challenges and Information Needs after Radiotherapy for Oral Cancer. Journal of Cancer Education, 32(4), 799–807. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5116276/

Bae, D. S., Canizares, M. F., Miller, P. E., Waters, P. M., & Goldfarb, C. A. (2017). Functional Impact of Congenital Hand Differences: Early Results From the Congenital Upper Limb Differences (CoULD) Registry. Journal of Hand Surgery, 43(4), 321-330. https://www.ncbi.nlm.nih.gov/pubmed/29241842

Baer, H. R., Thomas, S. P., Pan, Z., Tagawa, A., Carollo, J., & Heyn, P. C. (2019). Self-reported physical function is associated with walking speed in adults with cerebral palsy. Journal of pediatric rehabilitation medicine. https://www.ncbi.nlm.nih.gov/pubmed/31227669

Bajaj, J. S., Thacker, L. R., Wade, J. B., Sanyal, A. J., Heuman, D. M., Sterling, R. K., . . . Revicki, D. A. (2011). PROMIS computerised adaptive tests are dynamic instruments to measure health-related quality of life in patients with cirrhosis. Alimentary Pharmacology and Therapeutics, 34(9), 1123-1132. http://dx.doi.org/10.1111/j.1365-2036.2011.04842.x

Bajaj, J. S., White, M. B., Unser, A. B., Ganapathy, D., Fagan, A., Gavis, E. A., . . . Wade, J. B. (2016). Cirrhotic patients have good insight into their daily functional impairment despite prior hepatic encephalopathy: comparison with PROMIS norms. Metabolic Brain Disease, 31(5), 1199–1203. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5033693/

Bakhsh, W., Childs, S., Oh, I., Flemister, S., Baumhauer, J., & Ketz, J. (2019). Evaluating Patients for Elective Outpatient Foot and Ankle Surgery: Insurance as a Predictor of Patient Outcomes. Foot & Ankle Specialist. https://www.ncbi.nlm.nih.gov/pubmed/30628476

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Finkelstein, J. A., & Schwartz, C. E. (2019). Patient-reported outcomes in spine surgery: past, current, and future directions: JNSPG 75th Anniversary Invited Review Article. Journal of Neurosurgery: Spine, 31(2), 155-164. https://www.ncbi.nlm.nih.gov/pubmed/31370009

Fionna, K., Franziska, R., Christiane, O., Anne-Catherine, H., Ann-Katrin, M., Dana, B., & Ulrike, R.-S. (2017). The BELLA study – the mental health module of KIGGS Wave 2. Journal of Health Monitoring, September(Special Issue 3). http://www.rki.de/EN/Content/Health_Monitoring/JoHM_en/2017/JoHM_en_Inhalt_17_S3.html

Fischer, F., Gibbons, C., Coste, J., Valderas, J. M., Rose, M., & Leplège, A. (2018). Measurement invariance and general population reference values of the PROMIS Profile 29 in the UK, France, and Germany. Quality of Life Research. https://www.ncbi.nlm.nih.gov/pubmed/29350345

Fischer, H. F., & Rose, M. (2016). www.common-metrics.org: a web application to estimate scores from different patient-reported outcome measures on a common scale. BMC Medical Research Methodology, 16(1), 142. https://www.ncbi.nlm.nih.gov/pubmed/27760525

Fischer, H. F., Klug, C., Roeper, K., Blozik, E., Edelmann, F., Eisele, M., . . . Herrmann-Lingen, C. (2014). Screening for mental disorders in heart failure patients using computer-adaptive tests. Quality of Life Research, 23(5), 1609-1618. http://dx.doi.org/10.1007/s11136-013-0599-y

Fischer, H. F., Wahl, I., Nolte, S., Liegl, G., Brähler, E., Löwe, B., & Rose, M. (2016). Language-related differential item functioning between English and German PROMIS Depression items is negligible. International Journal of Methods in Psychiatric Research, 26(4), e1530. https://www.ncbi.nlm.nih.gov/pubmed/27747969

Fischerauer, S. F., Talaei-Khoei, M., Bexkens, R., Ring, D. C., Oh, L. S., & Vranceanu, A.-M. (2018). What Is the Relationship of Fear Avoidance to Physical Function and Pain Intensity in Injured Athletes? Clinical Orthopaedics and Related Research®. https://www.ncbi.nlm.nih.gov/pubmed/29480885

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Fisher, C., Namas, R., Seelman, D., Jaafar, S., Homer, K., Wilhalme, H., . . . Schiopu, E. (2019). Reliability, construct validity and responsiveness to change of the PROMIS-29 in systemic sclerosis-associated interstitial lung disease. Clinical and Experimental Rheumatology. https://www.ncbi.nlm.nih.gov/pubmed/31498073

Fisk, F., Franovic, S., Tramer, J. S., Gulledge, C., Kuhlmann, N. A., Chen, C., . . . Makhni, E. C. (2019). PROMIS CAT forms demonstrate responsiveness in patients following arthroscopic rotator cuff repair across numerous health domains. Journal of Shoulder and Elbow Surgery. https://www.ncbi.nlm.nih.gov/pubmed/31420223

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Fleming, J., Wood, G. C., Seiler, C., Cook, A., Lent, M. R., Still, C. D., . . . Irving, B. A. (2016). Electronically captured, patient-reported physical function: an important vital sign in obesity medicine. Obesity Science & Practice, 2(4), 399-406. https://www.ncbi.nlm.nih.gov/pubmed/28090345

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Flens, G., Smits, N., Terwee, C. B., Dekker, J., Huijbrechts, I., & de Beurs, E. (2017). Development of a Computer Adaptive Test for Depression Based on the Dutch-Flemish Version of the PROMIS Item Bank. Evaluation and the Health Professions, 40(1), 79-105. https://www.ncbi.nlm.nih.gov/pubmed/28705028

Flens, G., Smits, N., Terwee, C. B., Dekker, J., Huijbrechts, I., Spinhoven, P., & de Beurs, E. (2017). Development of a Computerized Adaptive Test for Anxiety Based on the Dutch–Flemish Version of the PROMIS Item Bank. Assessment. https://www.ncbi.nlm.nih.gov/pubmed/29231048

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Flynn, K. E., Reeve, B. B., Lin, L., Cyranowski, J. M., Bruner, D. W., & Weinfurt, K. P. (2013). Construct validity of the PROMIS(R) sexual function and satisfaction measures in patients with cancer. Health and Quality of Life Outcomes, 11, 40. http://dx.doi.org/10.1186/1477-7525-11-40

Flynn, K. E., Shelby, R. A., Mitchell, S. A., Fawzy, M. R., Hardy, N. C., Husain, A. M., . . . Weinfurt, K. P. (2010). Sleep-wake functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS((R))). Psycho-Oncology, 19(10), 1086-1093. http://dx.doi.org/10.1002/pon.1664

Flynn, K., Dew, M., Lin, L., Fawzy, M., Graham, F., Hahn, E., . . . Weinfurt, K. (2015). Reliability and construct validity of PROMIS® measures for patients with heart failure who undergo heart transplant. Quality of Life Research, 24(11), 2591-2599. http://dx.doi.org/10.1007/s11136-015-1010-y

Fogelberg, D. J., Vitiello, M. V., Hoffman, J. M., Bamer, A. M., & Amtmann, D. (2015). Comparison of Self-Report Sleep Measures for Individuals With Multiple Sclerosis and Spinal Cord Injury. Archives of Physical Medicine and Rehabilitation, 96(3), 478-483. http://dx.doi.org/10.1016/j.apmr.2014.10.001

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Forrest, C. B., Devine, J., Bevans, K. B., Becker, B. D., Carle, A. C., Teneralli, R. E., . . . Ravens-Sieberer, U. (2017). Development and psychometric evaluation of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions. Quality of Life Research. https://www.ncbi.nlm.nih.gov/pubmed/28828568

Forrest, C. B., Meltzer, L. J., Marcus, C. L., de la Motte, A., Kratchman, A., Buysse, D. J., . . . Bevans, K. B. (2018). Development and Validation of the PROMIS Pediatric Sleep Disturbance and Sleep-Related Impairment Item Banks. Sleep. https://www.ncbi.nlm.nih.gov/pubmed/29546286

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Forrest, C. B., Zorc, J. J., Moon, J., Pratiwadi, R., Becker, B. D., Maltenfort, M. G., & Guevara, J. P. (2018). Responsiveness of Children's Global Health to Improvements in Acute Asthma. Journal of Asthma, 1-22. https://www.ncbi.nlm.nih.gov/pubmed/29712498

Forrest, C., Tucker, C., Ravens-Sieberer, U., Pratiwadi, R., Moon, J., Teneralli, R., . . . Bevans, K. (2015). Concurrent validity of the PROMIS® pediatric global health measure. Quality of Life Research, 25(3), 739-751. http://dx.doi.org/10.1007/s11136-015-1111-7

Fortune-Greeley, A., Flynn, K., Jeffery, D., Williams, M., Keefe, F., Reeve, B., . . . Weinfurt, K. (2009). Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: improvements and remaining challenges. Quality of Life Research, 18(8), 1085-1093. http://dx.doi.org/10.1007/s11136-009-9523-x

Foucher, K. C., Cinnamon, C. C., Ryan, C. A., Chmell, S. J., & Dapiton, K. (2017). Hip abductor strength and fatigue are associated with activity levels more than one year after total hip replacement. Journal of Orthopaedic Research. https://www.ncbi.nlm.nih.gov/pubmed/29077218

Fox, C., Rodriguez, S., Rivera-Reyes, L., Loo, G., Hazan, A., & Hwang, U. (2019). PROMIS Physical Function 10-Item Short Form for Older Adults in an Emergency Setting. Journals of Gerontology. Series A, Biological Sciences and Medical Sciences. https://www.ncbi.nlm.nih.gov/pubmed/31251798

Fox, R. S., Moreno, P. I., Yanez, B., Estabrook, R., Thomas, J., Bouchard, L. C., . . . Penedo, F. J. (2019). Integrating PROMIS® computerized adaptive tests into a web-based intervention for prostate cancer. Health Psychology, 38(5), 403-409. https://www.ncbi.nlm.nih.gov/pubmed/31045423

Fox, R. S., Peipert, J. D., Vera-Llonch, M., Phillips, G., & Cella, D. (2020). PROMIS® and Neuro-QoL(TM) measures are valid measures of health-related quality of life among patients with familial chylomicronemia syndrome. Expert Review of Cardiovascular Therapy, 18(4), 231-238. https://pubmed.ncbi.nlm.nih.gov/32223345/

Francis, B. A., Beaumont, J., Maas, M. B., Liotta, E. M., Cella, D., Prabhakaran, S., . . . Naidech, A. M. (2018). Depressive symptom prevalence after intracerebral hemorrhage: a multi-center study. Journal of patient-reported outcomes, 2(1), 55. https://www.ncbi.nlm.nih.gov/pubmed/30470937

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Zheng, D. J., Krull, K. R., Chen, Y., Diller, L., Yasui, Y., Leisenring, W., . . . Kadan-Lottick, N. S. (2018). Long-term psychological and educational outcomes for survivors of neuroblastoma: A report from the Childhood Cancer Survivor Study. Cancer. http://dx.doi.org/10.1002/cncr.31379

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Zucker, N., Mauro, C., Craske, M., Wagner, H. R., Datta, N., Hopkins, H., . . . Egger, H. (2017). Acceptance-based interoceptive exposure for young children with functional abdominal pain. Behaviour Research and Therapy, 97, 200–212. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5786377/

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Zuniga, K. E., & Fernandez, J. (2017). Dietary Inflammatory Index and Objective and Subjective Memory Impairments in Breast Cancer Survivors. FASEB Journal, 31(1 Supplement), 790.736. http://www.fasebj.org/content/31/1_Supplement/790.36.abstract

Last updated: 7/14/2020

PROMIS^® Publications

See a list of primary citations for PROMIS measures

PROMIS® Publications

See a list of primary citations for PROMIS measures

PROMIS^® Publications