Compare Measurement Systems

PROMIS, Neuro-QoL and ASCQ-Me include self- and parent-report measures (i.e., Patient-reported Outcome Measures).
PROMIS is appropriate for use across health conditions. Neuro-QoL is intended for neurological populations. ASCQ-Me is intended for people with sickle-cell disease.
Measurement systems can be used independently or together (e.g,. ASCQ-Me + PROMIS).
NIH Toolbox includes self-report Emotion measures similar to PROMIS.
NIH Toolbox includes performance tests of cognitive, motor, and sensory function (also known as “objective measures”).

A researcher is interested in understanding cognitive and social functioning in people after a stroke. In a research study with people with stroke, the researcher used NIH Toolbox Cognitive Function tests to evaluate language, memory, processing speed, attention, and executive function for performance-based evaluation. The researcher also used Neuro-QoL self-reports of social function (e.g., Ability to Participate in Social Roles). The researcher used Neuro-QoL rather than PROMIS because stroke is a neurological condition. The researcher could have used PROMIS if interested in comparing stroke patients to a non-neurological patient population. However, in this case the researcher selected Neuro-QoL because measures are designed for neurological populations in particular.
In an orthopedic surgery clinic, all patients complete PROMIS Physical Function and Pain Interference computer adaptive tests (CATs). Self-report measures were selected to provide the patient’s perspective on their health. PROMIS measures were selected as they are appropriate for use with people with any condition. Performance-based tests of physical function (e.g., locomotion) provide different information than self-report and were not feasible to add in a busy clinic setting.