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| Target Population |
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People with neurological conditions | People with sickle cell disease |
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| Administration Platforms | ||||
| Self-report measures | X | X | X | Emotion and some Sensation measures |
| Proxy measures for peds | X | X | Emotion measures | |
| Proxy measures for adults | X | |||
| Performance tests of cognitive, motor, sensory function | X | |||
| Age | ||||
| Adults | X | X | X | X |
| Children |
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Most Emotion measures also have parent proxy report |
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| Mode of Administration Options | ||||
| Paper and pencil | X | X | X | Emotion and some Sensation measures |
| Computer administration | X | X | X | X |
| Types of Measures | ||||
| Short Forms | X | X | X | X |
| Computer Adaptive Tests | X | X | X | X |
| Languages | ||||
| English | X | X | X | X |
| Spanish | X | X | X | X |
| Other | X | X | X | X |
| Administration Platforms | ||||
| Paper | X | X | X | Emotion and some Sensation measures |
| Assessment Center API (used by REDCap and other ePRO platforms) | X | X | X | Emotion and some Sensation measures |
| NIH Toolbox and PROMIS iPad Apps | Selected measures | X | X | |
| Epic 2017 and later | Selected measures | |||
| Features | ||||
| Training required for use | X | |||
| Permission needed for use | Cognition only | |||
| Development funded by the NIH | X | X | X | X |
| Person-centered | X | X | X | X |
| Psychometrically sound | X | X | X | X |
| Standardized scoring | X | X | X | X |
| Brief completion time | X | X | X | X |
PROMIS®
Self-reported and parent-reported measures of global, physical, mental, and social health for adults and children in the general population and those living with a chronic condition
Neuro-QoL™
Self-reported and proxy-reported measures of physical, mental, and social health for adults and children living with a neurological condition
ASCQ-Me®
Self-reported measures of physical, mental, and social health for adults living with sickle cell disease
NIH Toolbox®
Performance tests of cognitive, motor, and sensory function and self-reported measures of emotional function for adults and children in the general population and those living with a chronic condition