Summary Table



Target Population	People with health conditions General population	People with neurological conditions	People with sickle cell disease	People with health conditions General population
Administration Platforms
Self-report measures	X	X	X	Emotion and some Sensation measures
Proxy measures for peds	X	X		Emotion measures
Proxy measures for adults		X
Performance tests of cognitive, motor, sensory function				X
Age
Adults	X	X	X	X
Children	Ages 8-17 self-report Ages 1-17 parent-proxy report	Ages 8-17 self-report Ages 8-17 proxy report		Ages 3 - 17 Most Emotion measures also have parent proxy report
Mode of Administration Options
Paper and pencil	X	X	X	Emotion and some Sensation measures
Computer administration	X	X	X	X
Types of Measures
Short Forms	X	X	X	X
Computer Adaptive Tests	X	X	X	X
Languages
English	X	X	X	X
Spanish	X	X	X	X
Other	X	X	X	X
Administration Platforms
Paper	X	X	X	Emotion and some Sensation measures
Assessment Center API (used by REDCap and other ePRO platforms)	X	X	X	Emotion and some Sensation measures
NIH Toolbox iPad App	Selected measures			X
Epic 2017 and later	Selected measures
Features
Training required for use				X
Permission needed for use				Cognition only
Development funded by the NIH	X	X	X	X
Person-centered	X	X	X	X
Psychometrically sound	X	X	X	X
Standardized scoring	X	X	X	X
Brief completion time	X	X	X	X

PROMIS^®

Self-reported and parent-reported measures of global, physical, mental, and social health for adults and children in the general population and those living with a chronic condition

Neuro-QoL™

Self-reported and proxy-reported measures of physical, mental, and social health for adults and children living with a neurological condition

ASCQ-Me^®

Self-reported measures of physical, mental, and social health for adults living with sickle cell disease

NIH Toolbox^®

Performance tests of cognitive, motor, and sensory function and self-reported measures of emotional function for adults and children in the general population and those living with a chronic condition