PROMIS

The Patient-Reported Outcomes Measurement Information System (PROMIS®) includes measures of physical, mental, and social health for adults and children.

Using the pediatric profile with older ages?

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3 years 7 months ago #842

Information about transforming PROMIS pediatric v2.0 scores to the PROMIS adult metric and vice versa for Depressive Symptoms, Anxiety, Anger, Mobility, Upper Extremity, Fatigue, and Pain Interference is available on the Linking Measures page at www.healthmeasures.net/score-and-interpr...ods/linking-measures.

Last edit: 8 months 3 weeks ago by nanrothrock.

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5 years 1 month ago #678

In 2018, Reeve and colleagues published linking tables for pediatric v2.0 and adult physical health measures in Quality of Life Research.
www.ncbi.nlm.nih.gov/pubmed/30539361

Last edit: 8 months 3 weeks ago by nanrothrock.

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7 years 9 months ago #203

There have been some efforts to link scores on PROMIS pediatric v2.0 measures with PROMIS adult measures. Bryce Reeve and colleagues published results in emotional distress (reference below). The Peds Perceived Cognitive Function measure (a measure developed prior to PROMIS Pediatric Cognitive Function) is also linked to adult Cognitive Function in PROMIS and Neuro-QoL.


Reeve, B. B., Thissen, D., DeWalt, D. A., Huang, I. C., Liu, Y., Magnus, B., Quinn, H., Gross, H. E., Kisala, P. A., Ni, P., Haley, S., Mulcahey, M. J., Charlifue, S., Hanks, R. A., Slavin, M., Jette, A., & Tulsky, D. S. (2016). Linkage between the PROMIS® pediatric and adult emotional distress measures. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 25(4), 823–833. doi.org/10.1007/s11136-015-1143-z

Contact HealthMeasures at help@healthmeasures.net if you are interested in developing additional linking tables.

Last edit: 8 months 3 weeks ago by nanrothrock.

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7 years 9 months ago #202

The PROMIS adult measures are for 18 years or older and the PROMIS pediatric measures are evaluated and recommended for children/adolescents between 8-17 years of age. We would recommend qualitative and quantitative studies to examine the performance of the adult PROMIS measures in adolescents below 18 years of age. A key question would be what would be the lowest age for which we are comfortable administering the adult PROMIS measures and the adolescent is able to read and understand the question and response categories, and provide a valid response. On a similar topic, the PROMIS linkage study (linking the adult and pediatric PROMIS measures), adolescents as young as 14 years and older completed the adult and pediatric PROMIS measures. This data was used to create the links.

In a separate study with a non-PROMIS measure (but likely similar literacy levels of the items as PROMIS items), we felt comfortable adolescents as young as 16 years will typically have little problems completing the adult forms. We recommend adolescents less than 16 years to complete the pediatric PRO measure (non-PROMIS). More highly literate 14-15 year olds will likely have little problems with the adult measures, but it is difficult to know an adolescent’s literacy levels in advance.

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8 years 7 months ago #33

We don’t have data yet (as of August 2015) on how the pediatric instruments perform in an 18-21 year-old age group. You could use the pediatric profile for this age group and note that it hasn’t been tested in this group yet. Alternately, you could administer an adult instrument. Note that the scores on adult measures are independent from scores on pediatric measures. You should not group them together for analyses (e.g., a T=40 on a ped measure does not equal T=40 on an adult measure.

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8 years 7 months ago #26

How does the pediatric profile (or other pediatric instruments) function with older populations such as 18-21 year olds?

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