- Posts: 48
Yes, I am familiar with his work.
Thank you very much for sharing your paper on validating PROMIS with late deafened adults. I look forward to reading this paper.
We recently completed PROMIS-ASL data collection on over 500 deaf adults who use ASL. David Cella and his team will begin psychometric analyses on this dataset soon.
We are now getting ready to administer PROMIS (English version) to early deafened adults who became deaf before 13 year old. The PROMIS survey will cover generic domains as well as additional items that are specific to deaf/hh experiences. We added these items using the standard methods in patient reported outcomes research (literature review, conceptual model/qualitative interviews, and expert advisory panel). We performed cognitive interviews for both ASL and English versions.
I will pull your article today. Thank you very much for posting this message and mentioning your important work.
I assume you are aware of work done by Dr. Steven Barnett on CAHPS:
Also, a relevant non-PROMIS publication you have probably seen (but in case not) is:
Stika, C. J., & Hays, R. D. (2016). Development and psychometric evaluation of a health-related quality of life instrument for individuals with adult-onset hearing loss. International Journal of Audiology, 55 (7), 381-389.
I am a new investigator of an R01 grant (funded by NIDCD) to adapt and translate a profile of PROMIS global, physical, mental, social, and communication health items in American Sign Language. In collaboration with the University of Arkansas at Little Rock, Gallaudet University, and Northwestern University, the new PROMIS-ASL items will be standardized and validated on a national sample of over 650 adults who are deaf or hard of hearing. This is a 5-year study.
I am deaf and use ASL on a daily basis. I work with a strong team of ASL assessment, clinical psychology, hearing-related outcomes, and psychometrics experts. Please contact me if you need help with translating additional PROMIS items to ASL or would like to collaborate on using PROMIS-ASL with deaf patients. We'd love to work with you!
Poorna Kushalnagar, Ph.D.
Director, Deaf Health Communication and Quality of Life Center
Rochester Institute of Technology