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Hello everyone. I'm a data analyst, working on scoring the PROMIS sleep disturbance survey measure. My research group has run into an issue, however…..it was just discovered that the PROMIS Pediatric Sleep Disturbance (Short Form 8a) was incorrectly administered to an adult population (the survey that should have been used was the PROMIS Sleep Disturbance Short Form 8a for adults). I now have survey responses from 80+ adults that are based on a survey that was NOT validated to be used in that population. Has anyone on here had a similar experience (wrong survey administered, in terms of validated population), and is there any way I can salvage this data?
I compared the Pediatric Sleep Disturbance Short Form 8a with the Adult Sleep Disturbance Short Form 8a, and there are three questions that are the same (with only slightly different but still similar in scoring likert scales). We are not interested in the T scores necessarily (that is, comparing our study population to a national average, etc), but rather we are interested in the change in sleep disturbance after an intervention (so any change in scores between pre and post intervention).
My thoughts on options, for both manuscripts/data analysis, are to either 1) report the change in RAW score results from the full pediatric survey, or 2) only report the changes in the raw scores for the three questions that were also on the adult survey (recognizing the difference in likert scales, but still treating them and scoring them using the health measures service template as if they were the exact adult survey version of the questions).
I appreciate any thoughts (or similar experiences) that anyone has on how to approach this situation, from both a data analysis and manuscript perspective!
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