We at the Center for Autism Research at the Children's Hospital of Philadelphia curated and validated PROMIS measures to assess Quality of Life for youth and adults with Autism Spectrum Disorder. See the attached for our article reference, and for instructions on how to replicate our PROMIS Autism Battery - Lifespan (PAB-L) in REDCap.
We got a very positive response from participants that we were measuring things that are meaningful to the autism community, and hope we have made it as easy as possible for others to use the same batteries.